Histology post-op significantly upgraded Gleason from 4+3 to 5+4 - now hormone treatment and radiotherapy

Hi,

I’ve updated my profile having been misdiagnosed and also not having had - until very recently - a meeting with an oncologist. Having had my op in December believing the Gleason to be 7, given the histology now revealing an ISUP 5, Gleason 5+4, I’ve had to push to get a meeting with an oncologist, otherwise my surgery team were simply advising a wait a further 3 months (6 months post-op) for a 2nd PSA test before even considering referrals. The oncologist I met last week has now confirmed a 3rd PSA is rising, and therefore has recommended hormone treatment which I’ve now already started, and radiotherapy. I’m still due to receive dates for the start of this, but expect to commence end of May.

I’m both anxious but at the same time feeling I’m being looked at ‘in the round’ rather than just the subject of a very overwhelmed surgery team. Knowing everyone is different and having had the myriad of potential side effects explained, I don’t know whether these are potentially life changing, temporary for the duration of the treatment or actually there are many people who don’t suffer from them at all. I feel extremely lucky post-surgery not to have had any significant side-effects such as leaking, urgency etc, so I may have conned myself into a false sense of security. 

Any advice on going through 6 months hormone treatment and radiotherapy is gratefully received. I”m 57, please see my profile for further info.

Thanks.