Still can't get bowel empty for planning scan

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First planning scan appt  - mini enema -

scan attempt - not empty -

Nurse admistered larger enema-

Still not empty enough - 

Given Ducusol laxative to take from now on - 2 a day - advised to follow low fibre/residue diet 

Come back in two weeks

Second attempt - mini enema - bowel movement
Attempted scan - bowel still not empty

Sent home to double laxative dose- so 4 a day

Another appt due in two more weeks.

I know some guys need a second go but I've had that and now really concerned I won't get this right and then be able to do it consistently for the radiotherapy.

  • Hello Patrick,

    Enquire about the availability of SGRT in your area - it is worth travelling for.  I had 20 sessions of this type of RT and enemas (or tattoos) were never mentioned..............or administered, by self or anyone else !

  • Hi

    What is your diet like ? This can make a big difference.

    Sandberg (Rob)

  • Hi   there isn’t a panic and it’s way better that everything is clear before RT is given.  I am sure you won’t be the first to have this problem.  Rob has mentioned diet and that is really important as is keeping hydrated.

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.

  • I'm doing everything I'm told diet related

    Had been on the low fibre/low reside diet as they recommend for last two weeks but didn't help last time. 2 litres of water a day.

    I started abiraterone a month ago and that can cause constipation - I think that didn't help. but last two weeks had a bowel movement most days and twice on the last appt day but that didn't do it on the day . Wouldn't say i was constipated now. Don't what what else I can do.

  •   doesn’t sound like much else you can do.  Pass the problem back to your team.  I am sure they will have a plan B!

    Best wishes, David

    Please remember that I am not medically trained and the above are my personal views.

  • When I had my radiotherapy they told me to drink three litres of water a day. Different hospitals different rules.

    I also ate a fair amount of prunes, as well as taking a laxative if necessary.

    The only other thing I did that was in any way different was to do the mini enema just before I left for the hospital.

    Most days I was cleared out when I got to the radiotherapy room.

    I have never paid so much attention to my bowel movements.

    Steve

    Changed, but not diminished.
  • Thanks for all the replies. I'm just going to have to keep going and see what they have as a Plan B if I can't produce on my third appt attempt in just over a weeks time. It's frustrating that such a mundane bodily function is holding back my treatment.

  • Hi, I had a similar experience but as bad: 

    I was on healthy high fibre diet and regular as clockwork. The day before planning meeting couldn’t empty my bowel. 
    On day of planning meeting I went about 4 times but my bowel wasn’t empty enough. Given Micro enema still not empty. Given a nurse administered enema (explosion). That emptied bowel and planning meeting when ahead. 
    On the first few days of radiotherapy, even though I’d emptied my bowel I still had too much waste. So sent out to empty again. I had started a low fibre diet. A nurse told me to go back to normal diet but reduced insoluble fibre. I was already prescribed Laxido which I was taking every night. I added a Senocot at night too and a mircro enema before going to hospital. I also had my normal breakfast of oats, flaxseeds, chia seeds, tinned fruit and soya milk every day and from that point, touch wood I have passed every day without being rejected. Once I got into a routine I was less stressed about it. Now on 33 of 37 sessions of RT completed. 
    I think my main problem was that I was so stressed about emptying my bowel ready for RT and the nurses agreed. I only took the Senocot for 7 days. 
    if it helps I found the actual RT a easy after sorting my bowel issues

    This might not work for you but I thought it might help to know you are not the only one. Good luck on your journey!

    Roy 

  • Sorry meant reduce insoluble fibre…not soluble!

  • Just to update. Third appt: mini enema self applied - not cleared enough.

    Another nurse administered enema - that eventually cleared enough to do the planning scan (although probably not completely empty was acceptable to them to go ahead)

    So radiotherapy due to start in two weeks - just hope I can be consistent - still on low fibre diet and laxatives daily.

    I suppose if I fail on the day - just have to keep coming back the next day til I get my 20 fractions.