Advanced prostate cancer / colorectal

Hello MrsWave 

I am so sorry to read your post and the way the cancer has not responded. I can't answer your questions from personal experience however I can give you some links to other groups on the Community where you may get some answers:

Bowel (colon and rectal) cancer forum 

Ileostomy, colostomy, urostomy and any other stoma support 

Just click on the links I have provided, you can join these groups and ask your questions there.

It might be an idea to speak to one of our Cancer Nurse Specialists on the Support Line on 0808 808 00 00 (8am to 8pm 7 days a week),

Another idea for you would be to pose your question in our "Ask A Nurse" section, again link here:

Ask a Nurse 

I hope the above helps and you get some answers.

Best wishes - Brian.

Hello Mrs Wave, I’m sorry to hear about your husband’s health problems. I’m afraid I can’t help you with information about the medication. However, when I was nursing years ago, we used to use a large foam ring with a hole in the middle ( think of the polo sweet) to help prevent pressure sores. I am wondering whether these are still available or if you could make one? This would mean your husbands buttocks would rest on the ring but his rectal area would be sort of suspended and there would be less pressure/ pain?

Most hospital trusts, I believe, have specialist stoma nurses. Should your husband decide to have a stoma , he should get help with care of the stoma and the skin around it and also how to change the bag etc. I would suggest enquiring whether these suggested stoma would be an ileostomy or a colostomy ( ie taken from the ileum - higher up , or colon -  lower down the intestines) .

just some thoughts from somebody now a long while retired from nursing and so very much out of date! but, I hope this might help in some small way.

Whatever, I do hope that, whatever the next step is, things  work out well for you both .

Thank you for your good advice. We have a rectal cushion on order which we hope will help. My husband gets very pessimistic when he feels things aren't working properly, once the work rounds are in place he starts to feel better. He has always seen the stoma bag as the final straw, but they say it has given relief and longer life to so many for him too, hopefully. Thank you

Thank you for your response. I will try the other links you suggest. Thank you again