Hi all, having had a PET scan for H &N cancer (post jn that forum) a hot spot showed up on Prostate. Thinking nothing about this as previously been diagnosed with an enlarged one, while investigation into urinary problems and waiting for TURPS surgery, my Urologist said he would check again for cancer. Anyway got results today PSA raised significantly from last February and MRI shows two area for concern on opposite sides of Prostate. So im now waiting for an appointment for biopsies.
Has anyone else been told there was nothing to worry about, only for this to change. Urologist said be thanful PET scan showed something up as it would probably have not been picked up and there is no sign of it having spread. Devastated to say the least, having just gone through surgery (end of December) for T1N1M0 surgery on tongue and bilateral neck dissection and just having started back at work, only to be starting the process all over again for Prostste.
Has anyone else been told there was nothing to worry about, only for this to change. Urologist said be thanful PET scan showed something up as it would probably have not been picked up and currently there is no sign of it having spread.
I think you should worry more about the tongue and neck than a speedy process for the prostate.
Firstly the PC (Prostate Cancer) is slow changing and your diagnosis via blood tests, biopsy’s and scans is a first step in the right direction.
There’s a profile button above this post in which you can put up your vital stats and the pathway till you got here. All the checks and talks, scans and tests. This will then direct the answer accurately and quickly. It’s anonymous and you can find out a bit (or a lot) about other people. You will probably find someone who is in the same boat as you.
Good luck
Hi TRJB , that’s a real bad hand you have been dealt, but the good news on the PCa front, is that when caught early (like you seem to be), it sounds curable. This site will help you through any diagnosis and treatment questions. Just ask when you need.
Best wishes, David
Please remember that I am not medically trained and the above are my personal views.
Hello TRJB
I am so sorry to find you joining us but this is a great place for help and advice.
The usual diagnostic path is a prostate biopsy although I am aware you are awaiting a TURP operation. As they take "chips" from your prostate during the TURP and test them for cancer (I had an "upgrade" to my diagnosis from my TURP chips - see my profile) can your urologist bring the TURP forward and "kill 2 birds with one stone". Only an idea but if you have a lowish PSA it's worth asking the question.
As David (David2017) said above - we are happy to answer any questions - however trivial.
Best wishes - Brian.

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Hi, thanks for reply. I wasn't given that option but it would make sense. All I was told was Only TURPS if biopsies clear. Options given were removal or radiotherapy if come back positive. I am worried as had back ache for quite a substantial time now and thinking all maybe connected. Think it was the surprise after a couple of years being told it was benign hyperplasia and on tablets for this. No doubt I will have lots of questions when I know a bit more
Update: - see profile
Treatment plan agreed, so feel a bit better now I know what this is.
Hormone therapy started - Bicalutamide, followed by an injection in couple of weeks
TURP booked 03/04/2026
Radiotherapy planning 16/05/2026 after provided TURP healed
A little worried about side effects of hormones but from what I can gather not everyone reacts the same and TURP surgery does not sound pleasant but after having surgery for H & N cancer over Christmas, I'm sure it can't be as bad???? Anyway, at least things are moving rapidly forward now.
Hello TRJB
Thank you for the update, as you say things are moving rapidly which is a good thing.
The TURP surgery I found easy (and I am a wimp when it comes to surgery or pain). I had my pre-op and blood match the week before the operation and arrived at hospital on the day of the operation at 7.00am. Met the surgeon and anesthetist and agreed a spinal block rather than a general anesthetic. (you don't want to miss anything!!).
Theatre at 9.30 back on the ward for lunch at 11.30 with no pain. Catheter overnight and removed the following morning - once I could pass 750ml of clear urine I was on my way home at 1.30 in the afternoon.
I hope this helps, if you have any questions regarding the TURP or Hormone Therapy please don't hesitate to contact me.
I wish you well moving forward.
Best wishes - Brian.

Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
Strength, Courage, Faith, Hope, Defiance, VICTORY.
I am a Macmillan volunteer.
Thank you for your reply, settles my mind a bit about TURP. Just hoping I'm not out of action for too long, as working is taking my mind of everything and keeping me fit and mobile.
Will keep updating, as I've found this forum a valuable source of information, just reading and following the different journeys and Q/A as I hope mine is to others. Knowing your not alone is a massive help and comfort.
Hello TRJB
It's no problem, happy to answer any specific questions.
After the TURP (it was done on a Friday and I was back home Saturday afternoon) i was told no heavy lifting for 6 weeks and have a couple of "quiet weeks" - return to work when you feel fit. So I drive a desk and computer for work - I gave Monday a miss but was back to normal on Tuesday.
i wish you well moving forward - do keep us updated as to how it goes.
Best wishes - Brian.

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