Prostate cancer treatment

HI Rod,

I am so sorry to find you on this site, but you are doing the right thing by reaching out for advice.

I can't answer your question on SABR, but wanted to reply to keep this question at the very top of the recent threads.   I do want to ask if there is a reason for not wanting Radiotherapy?

I also had the operation and two years after my PSA is 0.24.  I had a new scan when my PSA reached 0.21 in April 2026, but that found nothing.  At the follow up meeting with Oncology they started to suggest the same treatment as you are facing but when we (me and my wife) reminded them of my Ulcerative Colitis (Bowel Inflammation) they changed the plan to continued surveillance up to a PSA of 0.5 and then another scan.  If you do have a bowel condition of any kind it is worth asking if you could also defer to PSA of 0.5.  I am not medically trained, but I am sure I have read on here that the NHS generally wants you to participate in setting your treatment as that generally leads to less poor mental health, so well worth making your position clear and getting a clear statement on why you can't have the SABR treatment.

Whatever the outcome, I so hope you get a treatment plan that gives you peace of mind and that it is a huge success!

Hi Paul, thanks for response, the reason l am apprehensive about having radiotherapy is my consultant asked if l suffered with incontinence, l said yes quite a bit and on average 6 pads a day and a night pad, he said it will get worse and that concerns me as it gets me down. I also don't know what 6 months of hormone therapy will do to me.

Kind regards

Hi Rod

I must admit if u are suffering from incontinence issues then obviously  RT isn't going to help.

In answer to your SABR question I believe not used as a salvage treatment after surgery or not yet anyway.

Just my thoughts but ,.22 is still fairly low it hasn't gone up that much.

Have the pet scan and see what that says first.

If nothing shows can't see any point in doing any treatment at the moment.

Please remember that is just my opinion, doesn't mean it's right.

Let us know how it goes.

Best wishes 

Steve 

Cheers Steve will do

Hi Rod,

we have had the same experience.

My operation was a month or so after yours but I hit the 0.2 tripwire within a year.

I have had salvage RT without ADT which I specifically wanted to avoid and was told it was not needed if RT was started before PSA hits 0.5 when the chances of success begin to reduce (new research this year)

Therefore I would not wait for PSA to rise.

I really did not want radiotherapy but I accepted that no alternative was on offer.

Offering a PET scan is a good sign as they are refused at some hospitals as they say they are not needed and usually don't show much at 0.2  but if they do then that could help avoid getting the wrong treatment.

You wont be offered SABR as I got a second opinion and was you told you can only have SABR if you have a prostate.

Please contact me by PM if you want to discuss anything in further detail.

Albert

Thankyou Albert, all this information is invaluable to me