Hi,
My Dad has been diagnosed with Prostate Cancer and Metastatic Bone Cancer (so far) and feeling really worried and overwhelmed on what may be next…
His cancer journey is very new and it feels 100mph at the moment with so much uncertainty and unknowing, His back pain symptoms started mid September and his diagnosis started from a simple GP appointment where he was urgently referred to urology. (I won’t bore you with the back detail)
My dad is 61 and a very hardworking/fit man (up at 7am for work and home at 8pm). His PSA results were 777 and Alkaline Phosphate 899.
We initially seen a consultant privately who said they give patients like my dad 5 years, which filled us with dread on our first medical appointment, he also stated chemotherapy was not an option and radiotherapy only an option if the cancer shrunk with Hormone therapy. My dad had a localised MRI of his pelvis done on10/10/25. We then went to his NHS consultant appointment on 13/10/25 where we seen a different consultant who provided more hope of 5+ years and a pain free life, this consultant diagnosed prostate and bone metastasis cancer from blood test, back passage examination and MRI imaging. At this appointment he said he wanted to start my dad’s HT immediately and also took a biopsy, my dad had two large injections of HT (Firmagon) and had an appointment for a bone scan 24/10 booked and a follow up appointment for biopsy and bone scan results on 30/10.
The HT treatment started decreasing his severe back pain within 24-48 hours and he had a few pain free days however the pain started returning on Monday and has gradually got worse, my dad has now got numbness in his legs, stabbing pains in his shoulders and in pain that is reducing him to tears. He is currently sat in A+E having an MRI of his spine for suspected MSCC.
Our worry is the consultant promised him he could make him pain free (even encouraged a 3 week holiday to India for their 40th wedding anniversary 2 days after his first HT injection) but yet just over a week later he is back in deliberating pain and progressing symptoms.
Please if anyone has a similar story with positive outcomes, it would really help my family have a glimmer of hope of a positive ending.
So sorry for the long post and the babbling, it’s such unknown terrify for us, I have no idea what is relevant and what is not!
