Hello everyone
I thought l would give an update since my robotic assisted radical prostatectomy, as it is now 3 weeks since the operation.
I was having terrible headaches and no sleep and feeling pretty low. It came to a head on Sunday 12th of January. My catheter was leaking really bad and l had a bad reaction to the antibiotics (diahorrea) as l had a water infection. I rang the Hospital and spent 6 hours there, having my catheter removed and getting thoroughly checked out also some different antibiotics.
I was due to have my catheter removed on the 13th.
From the Monday(13th) onwards my headaches have stopped but still having continuous broken sleep. I am now very sore front and back so I'm using Cavilon and Sudacrem. I have very little control over my bladder and having to wear incontinence pants, which l get through quite a few a day. I am desperately trying not let all of this get on top of me but it's not easy.
I had a letter from my consultant to my doctor arrive the other day. I didn't find many positives in what he said in summing up and it certainly doesn't help my state of mind when l read "There is a fairly high chance that the cancer does come back over the next 10 years "
I am doing everything by the book and the suggested exercises.
My family have been brilliant especially my wife. But all of this is such a struggle to deal with.
Regards Nigel
Hello Nigel (Rod the Mod)
I am so sorry to read that all is not well - a problem shared etc - let's hope now the catheter is out and you are doing your pelvic floor exercises things will improve.
"There is a fairly high chance that the cancer does come back over the next 10 years "
i would have thought it's a bit early for comments like that as it's usual to have the Prostate examined and the histology will give a good idea if the surgery has been successful or not. After surgery if there is any issues you are still good to go down the HT/RT route although I know it's not what you want.
For that little bit of extra support we have free counselling provided by BUPA and here's the link - Free BUPA counselling.
Don't forget there's also our support line on 0808 808 00 00 (8am to 8pm 7 days a week. They can provide you with some extra support.
If I can do anything for you please don't hesitate to contact me.
Best wishes - Brian.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
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