Surgery update

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Hello everyone

I thought l would give an update since my robotic assisted radical prostatectomy, as it is now 3 weeks since the operation.

I was having terrible headaches and no sleep and feeling pretty low. It came to a head on Sunday 12th of January. My catheter was leaking really bad and l had a bad reaction to the antibiotics (diahorrea) as l had a water infection. I rang the Hospital and spent 6 hours there, having my catheter removed and getting thoroughly checked out also some different antibiotics.

I was due to have my catheter removed on the 13th.

From the Monday(13th) onwards my headaches have stopped but still having continuous broken sleep. I am now very sore front and back so I'm using Cavilon and Sudacrem. I have very little control over my bladder and having to wear incontinence pants, which l get through quite a few a day. I am desperately trying not let all of this get on top of me but it's not easy.

I had a letter from my consultant to my doctor arrive the other day. I didn't find many positives in what he said in summing up and it certainly doesn't help my state of mind when l read "There is a fairly high chance that the cancer does come back over the next 10 years "

I am doing everything by the book and the suggested exercises.

My family have been brilliant especially my wife. But all of this is such a struggle to deal with.

Regards Nigel

Rod the Mod 5 months ago in reply to Annieone

Hi A

My Gleason score was 3+4 involving four cores from left posterior only, T3a N0 M0 with extracapsular extension, PSA 21, no previous abdominal surgery, no significant medical history, prostate size 32.7 cc, MUL approximately 1.3cm.

The Consultant said about me "He has by definition CPG 5 prostate cancer which is high risk"

Hope some of this helps

Kind regards

Annieone 5 months ago in reply to Rod the Mod

Hi there

Your stats to me don’t sound bad at all although I’m not medical. I’m assuming your bone scan was clear as you had the RP

My husbands surgeon used the Memorial Sloan post surgery nonogram to give us an idea of the risk of needing some salvage radiation in the future and to give us an idea of the overall survival stats at 15 years and we were hearted that even with Gleason 9 that 95% of men Would still be alive.

You can Google this for yourself and input your stats if you would like some further info and I found it useful as the NHS were using this as their yardstick.

I think you have good cause to be optimistic I really do!
take care

David2017 5 months ago in reply to Annieone

Hi Annieone thanks for the info. The tool only works for N0 & M0 I think, but remember the stats are always looking at survival from years ago, so reality is on average better now. David

Best wishes, David

Please remember that I am not medically trained and the above are my personal views.

Annieone 5 months ago in reply to David2017

Even better David

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