A bit of a mess

Sounds like you are going through hell but it’s just the waiting that’s impossible.

The MRI could be this week if there’s cancellations but surely in the two weeks. But the wait for reports after is to be factored in.

The spine, pelvis and ribs are the normal places that the bleedin’ prostate cancer lurks. But after the diagnosis it will get a right bashing from an array of treatments in the oncologists armoury.

Meet your powder dry, be patient, be strong and positive if you can. This is a long battle in front of you.

If you don’t already know, this is a couples disease so if you have a significant other, they will be as affected by this as you. So brace yourself.

The scans and biopsies and bloods are all the data need to make the diagnosis via urology to oncology and we are here to help.

Ask anything here and someone will respond that’s in the same boat as you or has been through what you’re about to. Keep us posted.

The waiting is hard, always the worst bit of the pathway.

Yes, my wife came with me to see the GP today. I saw another GP last week about the pain, night sweats, bleeding, fatigue and incontinence problems I have been having.

She asked me to sit in a chair and lift each leg up in turn. Then told me it was sciatica and to self refer to a physio, but to go to A&E if I cr@p myself because I would then have spinal compression. 

An earlier psa test was 0.7 (I am 58). She did not examine me at all but made the mistake of forgetting I could see the notes in the NHS app.

I emailed the practise manager. Shame it has to get to that.

Sorry for any typos. Adding this from my phone.