Hi Bricki 

My name is Steph and I'm part of the Community team. I noticed that your post seems to have been missed, so I hope you don't mind me responding to bump it up the forum. 

There have been quite a few discussions about Enzalutamide in the prostate cancer forum recently, for example this thread. You would be very welcome to join in this conversation too if you feel comfortable doing so.

I have also saved a search for you showing lots of conversations about Enzalutamide here.

In addition to sharing experiences with Community members, you might also find it helpful to have a read through Macmillan's information about Enzalutamide here.

If you’d like some more support today, I’d also encourage you to contact the Macmillan Support Line. You can talk things through with someone who is there to listen and find out more about the emotional, practical and financial support we can offer.  Our Support Line teams are available 7 days a week, 8am-8pm on freephone 0808 808 00 00, email or live webchat.

If you have any questions or need help with using the Community, please don't hesitate to reach out by email at community@macmillan.org.uk 

Best wishes

Hi Bricki

Ive been on Enzalutamide for a few years, when I first took it, it threw my head all over the place, so I told the team about this and my dosage was reduced to two, then steadily built back up to four. They still have effects on me, but I’m able to tolerate more easily now.

Stay safe

Joe