Enzalutamide

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Hi, does anyone suffer from aching leg joints since taking Enzalutamide? I have been taking it for about 8 months now and my dosage has been reduced to 120 milligrams due to the effects of fatigue but not sure it causes the joint pain.

Thanks

  • That's an odd post Philpc22, just a full stop.

  • Sorry still new to the group was playing changing my group name from PhilPC22 not whether I have had success.

  • Sorry PhilPC22, just a winde up couldn't resist I thought it was just a mistake, how are you doing?

  • Hi it would help everyone give you advice if you could complete your profile, you can read mine by touching my icon the flower pot man.

  • Hi Milo1. My dad has just started (1week) taking enzalutamide, so I can't offer any insight to his side effects yet, but am interested in hearing what other people's experience of the medication is. He gets very tired easily. I'd the medication working for you? 

  • Hi, my Dad is taking Enzalutamide and he’s been really well on it. The worst thing I notice is the hot flushes and he does get tired but still working pretty much full time. It’s a scary time but the treatments do seem very effective. I hope your dad responds well to the medication Blush

  • Hi NMY, I've been on Enzalutamide for over 2years now, hot flushes and tiredness is the standard 2 side effects, how many of the others you get depends on how long you take them for.

    Some info about your dad would be helpful, please complete his profile then you can be given better advice, you can read my profile by touching the icon next to my name. All the best Ulls.

  • thanks Ulls - I've added some blurb to my profile now.  

  • Hi NMY, I'm just a patient no medical training, and can only say what I've been through, have you read my profile, enzalutamide works for me I'm not bothered about the side effects so long as I keep going.

  • HI NMY, I have been taking Enzalutamide for 9 months along with a three monthly Decapetyl injection my initial PSA was 61 immediately after the first injection it dropped to 0.03 and has remained the same since. I still suffer from fatigue and recently my legs have started aching. I have made a doctors appointment to see if there is any medication for these side effects;. Hope your dad is ok.