Enzalutamide

It does seem rather odd to take Enzalutamide last thing at night, personally my last meal is at 7, I was told with or just after food I've been taking them since march 21

Hi Sharloup

I don't think there's a given time to take them.  I take all my  pills after breakfast, it gets them out of the way and I find I don't forget to take them if it's first thing in the morning.

Hi Milo1,

My partner has Abiraterone which is really similar to Enzalutamide and similar side effects. Apart from the usual Fatigue and hot sweats, bone pain and osteoporosis is also a side effect of both medications, he has a steroid Prednisolone to help counteract this, is that something you have? He has also been told that he must take extra Calcium and vitamin D and do weight bearing exercises to improve his bone strength. 

Maybe of help? 

Best wishes

L

Hi guy's, I take Enzalutamide, and now have osteoporosis, yes I now take bone tablet and calcium tablets aswell as exercises, have only been taking the tablets for a few months, I've been told that my danger point's are wrists hips and pelvic bone if I fall which I'm prone to I will not might brake or fracture one of them.

Hi,

Thank you for your reply. I didn't realise that that bone pain and osteoporosis are common side effects, I do take calcium and vitamin D supplements. I will check with my doctor about the Prednisolone as the aches and pains in my legs seem to be increasing. 

Best Regards

I don’t know if they are common but they are side effects. My partner takes 5mg it’s a very low dose but it seems to be good at the moment. 
Hope you find the answer to your pain .

L

Yes, definitely follow it up. They seem to have medications to counteract most things so definitely ask the question. 

Hi Ulls

my hubby started on enzalutamide a week ago but I like to do my research and not only read the leaflet that comes with it but I asked the hospital pharmacist best time to take it

Initialky my main concern was that it can cause seizures and then extreme fatigue

The pharmacist explained seizures are roughly 1 : 1000

He suggested that if it were taken at night it would help hubby sleep as that the first 8 hours are when fatigue hits. 

Hope you’re keeping well 

x

Hi mistymoon1, I don't have seizures as such but during the night my whole body Thrashers about, my spouse goes to another room as she worried that I will catch her, I don't know anything about it but usually tired next day, I think it's because my legs feel heave and sore before bedtime, spouse calls it the twitches..

If your husband has been advised just keep on taking them in the evening.

Has anyone found a good remedy to counteract the hot flushes? My dad has tried sage but is struggling with them at the moment?