Advanced Prostate Cancer and the Expected Life Expectancy

Good Morning Alwayshope 

Alwayshope said:

I am sure that our champion may have access to different sources of help

The only one I have for that is

https://www.mind.org.uk/information-support/types-of-mental-health-problems/sleep-problems/tips-to-improve-your-sleep/

You can always try our support line on 0808 808 00 00 (8am to 8pm) They have more resources than I have and may have something different.

My personal choice for sleeping is reading a complicated book - something that challenges you - I am soon asleep - soon to be woken up by the sound of said book falling on the bedroom floor!!

Best wishes - Brian.

Hi AH,

I have suffered with insomnia for the last 4-5 years. It started with not being able to get to sleep but now it is more often not being able to stay asleep! 

I have tried umpteen things including: no late screen time; Sainsbury’s night time tea (camomile, valerian and lavender; lavender spray; relaxation, meditation and hypnosis utube programs; cutting out caffeine; no late night eating; keeping regular hours; reading; radio and tv on a boring programme etc. I rarely drink alcohol. I had shingles about 3 years ago and the GP prescribed amytryptiline. That worked wonders for the insomnia but it was only 2 weeks supply! I understand the reasons why they don’t want to prescribe ‘sleeping pills’ for any length of time ( risks of dementia, falls, addiction etc) and I’m happy to accept this. But…. At 2am, 3am 4am it drives me nuts!!!!!

I will look at the link Brian has kindly provided!

also, good point about checking with medics before resorting to alternative drugs!

Finally, I see that Greece is having a massive heat wave. I hope you are both coping ok?

Don't forget, if you are reading in bed you can be woken up by the book falling onto your face.

We try and do a crossword and are both asleep in about 4 or 5 minutes.  I put the paper down, turn off the light and can’t sleep for ages!  Think it’s age related.️

Don't know about you, but I can fall asleep anytime watching TV.

I know when I was really suffering with fatigue, I was having naps all the time.

Well that's what the oncologist said to me, for over 3 years my psa has been 0.007 down from 305 totally undetectable. I take it with a pinch of salt, this cancer can decide to grow back anytime so I just enjoy life to the full also I know there's more treatments out there. 

Hi Hotflushiva,

0.007 is so low from 305! without chemo or RT? that's quite amazing. the power of Enzalutamide. 

L

Hello Hotflushiva, I think what everyone is picking up on is the different terms used by our medical teams! ‘In remission’ and ‘intention to cure’ sound much kinder than ‘terminal’ to all of us. They give us hope at the time when they deliver the diagnosis - cancer- a diagnosis we all dread! More importantly, with that hope we can hang on to that and enjoy our lives more fully. After all, we could all be considered ‘terminal’, couldn’t we? There’s still a lot of living to do in the time before that terminal event.,I’m not advocating that they should lie to us but I do think they could sometimes choose their words more carefully! Long may our ‘in remissions ‘ last! May their ‘intentions to cure’ be met! 

WW, you "hit the nail right on the head!!"

Great post!