Hi all, second post from me but this time my husband is keen to hear from others in a similar situation.
briefly, he was diagnosed at the end of May with stage 4, Gleason 9, spread to pelvic wall and multiple lymph nodes. the oncologist said prognosis 18-24 months but if treatment works then maybe 4 years. My husband is finding this prognosis so difficult to comes to terms with. I have tried to reassure him that this may not be the case as I have read on here of lots in a similar situation that have surpassed this time.
We are still in complete shock and my husband still feels really angry as he had been back and forth to see the GP for a couple of years with, what we know now, many symptoms of prostate cancer and maybe if he hears about guys in a similar situation then it may help.
thank you all x
Congratulation your PSA is below normal and that’s great.
Keep the good work going. God bless you
Congratulations Your PSA reading is very low so keep the good work going. God bless you
Love this wording and your positivity - all so true! Xx
I am new to this, having been diagnosed in the last 8 weeks, and now on a treatment. Helped by people on here, like @WorriedWife, Millibob and Alwayshope , I have found that words matter, because they shape your thoughts.
I received a treatment plan only yesterday, which was very positive. The Oncologist told me the aim was to cure. I am happy with that.
I am also aware that this cancer comes back, and has to be treated again, in a reasonable percentage of cases.
So, I am thinking that my illness, in remission, is "on hold".
This comes from my days at work, being involved in projects which did not come to fruition. All the work done on the project was maintained in case it was needed, and, if needed, pushed back into action. As I am used to that idea, it is not especially frightening.
As mentioned elsewhere, I am also considering it as something which is beaten down by hormone therapy, given a good kicking by radiotherapy, then have even more life sucked out of it by more hormone therapy. Once that's done, we stand over it with a stick to make sure that if it does try to get up again you give it a good bashing.
Both of these thoughts help me deal with the inherent lack of certainty.
People will find there own words, but it is a way of coming to terms with something that we can call a life sentence in very positive terms.
Steve
Changed, but not diminished.
Hi Mstev2, I absolutely love your analogy! I think of the prostate cancer as just another uncertainty in a very uncertain world. At least those of us 'in the system' for the treatment or management of this darned disease have the certainty that we are doing everything we can to get the best possible outcome. We also know that you men are now in the best possible times ever for prostate cancer care and from what I hear, newer treatments are waiting in the wings for us all!!!
Couldn't agree more worriedwife, my oncologist said my body has reacted well to the treatment in fact my treatment has changed from 4 enzutomide tablets down to 3 daily and monthly injections to 6 monthly injections, get my blood test in 2 weeks time, I'll be over the moon if psa is still 0.007. I must admit the bone pains are occurring a bit more but they soon dissappear after paracetamol. These keep me in a positive mind and with more treatments I'm hoping to have more years above ground.
Hi Desertfalcon,
Great name btw. Thank you for that, He definitely does work hard to keep his body in the best shape he can to counteract the side effects of the medication, it makes a difference. You don’t have a profile and I was wondering whats your journey with PC and where you are now with it ?
Best wishes
L
I have just read your post excellent news reducing your meds, see you on Tuesday if your going to Ms
Cheers Ulls, might be going to a funeral on Tuesday, if not I'll try and attend Maggies, stay safe.
Ivor, Ulls, hopefully see you both there.
Steve (SteveCam)
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