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Hi all I'm home from hospital after primary debulking surgery on the 19th Nov. I presented with CA125 of 841, and a 15cm tumour on my ovary. They removed two ovarian tumours, plus omentum, full hysterectomy, and para-aortic lymph nodes which were looking...
Hi , I’m Jade I’m 32 and have been poorly for months and months , everyday I’m in pain with my stomach and pelvis , feeling and being sick , dizzy , weak and high pulse rate , in explained low moods , felt like I was going crazy due to the erratic mood...
Hello, I’m in remission after the big op and 6 lots of chemo. Now been on PARP inhibitors (Niraporib) for 3 weeks. I’m now getting daily waves of sickness which I did not have initially and also so fatigued by 6pm (even after a post-lunch nap) that I...
Not sure I spelt it correctly...I would like to hear from someone who has had a similar experience from mine. I was diagnosed with ovarian cancer stage 3 ; had 4 chemio then surgery then other 2 chemio and I m continuing every 3 weeks since then with...
I’m just in pieces waiting for further biopsies. I’m now being told they’ve seen a mass on my ovary. This is from ct scans that were done for the ct guided biopsies on my peritoneal nodules. How can my ca-125 blood test be normal? This is the hope I...
Hi there, I've had an ultrasound for postmenopausal bleeding and there is a swelling on my tube/ovary, that wasn't there 18 months ago when I had a scan for a polyp. I'm awaiting ca125 result, however I have two symptoms, one that my GP has dismissed...
In 2021 (age 73) I was diagnosed with clear cell ovarian cancer, operated in September Stage 1C. All has been well, until this summer when I had to undergo open heart surgery for an aneurysm, which was traumatic enough, but in December after a PET scan...
Hi has anyone here had CTscan every 2 months? I feel it is too often and I worry about radiations. I m interested in hearing from women that have had this and are now cancer free
Hello everyone, newbie here! I had my hysterectomy just before Christmas, Was told I had stage 3 and will need chemo. Still waiting for full results and a date to start but told will be before end of January. It’s the uncertainty that is the most difficult...
I have been diagnosed with stage 3 ovarian cancer and are now just about to have my third round of Chemotherapy Up until now I have been OK mentally and coped but after three months are feeling a bit despondent and tired . How can I cope with this and...
