Niraparib. Hello everyone...I have ovarian cancer stage 4 grade a.

Hi Blossom1 and a very warm welcome to the online community which I hope you'll find is both an informative and supportive place to be.

I have a different type of cancer to you so can't share any experiences with the drug Niraparib. However, I noticed that your post hadn't had any replies so popped on to 'bump' it back to the top of the discussion list. I've also done a search in the group and found these previous posts which mention Niraparib.

It would be great if you could pop something about your diagnosis and treatment into your profile as it really helps others when replying to you and also when looking for someone on a similar pathway. It also means that you don't have to keep repeating yourself. To do this click on your username and then select 'Profile'. You can amend it at any time and if you're not sure what to write you can take a look at mine by clicking on my username.

x

Hi like you I was diagnosed with 3c last August had 6 chemos with major debulking and a bowel resection. All good ca 125 of 10 now. I have been taking olaparib 300mg twice a day for 9 weeks with avastin 3 weekly infusions.

Not quite the same drug but I'm guessing similar. I have found I ache more in my joints and an fatigued more, but no nausea or sleeplessness. My advice to myself is take anything that keeps us going. Good luck you can smash this. 

Hi, I'm wondering how you are getting on with Niraparib, as I myself was diagnosed with oc stage 4b last November, I had chemo and debunking op which thank God were successful, as it stands I have no cancer but I am going on Niraparib on 7 November hence me asking how you are, ,.

Ann.

Hi

1. I have been on Nipararib for about 3 months now. In the last month my haemoglobin has been affected and gone down a lot. I've had one blood transfusion and am due another this week. After that, the consultant is going to reduce my dosage to 100mg.  I'm keeping fingers crossed!

This is what I'm scared of as even on chemo I got so anemic I had to have blood transfusion, I got so weak and so out of breath.... But I will pray it all goes well!! Thanks for reply and loads of good wishes, let's hope we both get best results possible!! God bless.

Hi Blossom1

im new to the group diagnosed with stage 3 ovarian cancer last November l also have had 8 chemotherapy treatments and major debaulking surgery. Today have been put on Parp inhibitor 200mg day taking first one tonight. I’m obviously interested in how your doing .

Best wishes .

Hi...I was wondering how you are getting on I too was diagnosed with stage 4b oc last year I had chemo and debunking op., I have been on Niraparib.200mg Ive been taking them for 5 day's and other than not sleeping I seem to tolerating them, .

Best wishes .

Hi, how are you getting on with Niraparib? I'm also on them, wondering if any side effects.

Ann.

Hi, Blossom1. I was diagnosed with 3c, had debulking surgery and chemo, and have been on niraparib 14 months, 200 mg. My blood tests are all pretty normal. I’m fatigued, and I have some dry skin issues, but basically, no real side effects. 

I think I’m only supposed to take it for 3 years, but I’m trying not to worry about that now!

I hope you’re continuing to feel well.

Hi, I have oc, 4b, had chemo and op, I am on 200mg Niraparib, since November so coming up to 6 month with no real side effects, but my ca125 is still rising? Nurse said everything else is fine looking at scan and how I'm feeling but still a big worry for me today my ca 125 is 608?  Has anyone else seen a rise in ca125? While on Niraparib? .,

Thank you!