I may be back

Hi Foxygirl. of course you will be back! Good luck with the appointment next week. It might not be as bad as you think & your team sound like they are on it.

My treatment was the same as yours & my Parp inhibitors ended over a year ago too . Being BRCA2 I am well aware that it will be back at some point & my next bloods are just before Christmas with results in the new year.

Try to keep positive-I know it’s hard but make the most of every day. Keep posting!

lLivinginhope

Good luck, will be thinking of you! x

Well nothing to worry about, still stable.

Thought I'd got over scanziety, my consultant just wanted to check in on me. 

Keep going girl's my mantra remains the same 

"I control the cancer it doesn't control me "

Hi foxy 

your journey is very similar to mine i have had debulking op in September and have had 2 more chemos i have been offered a choice between daily Niraparib or avastin and oliparib I’m leaning towards the avastin and oliparib option but the side effects are scary. from reading your journey I see you have had that treatment and just wondered  how you got in with it if you don’t mind me asking, 

Hi yes I had the avastin and 2 years of 300mg bd oliparib, can't thank that treatment enough ,I have 10mm of something left too small to know what it is. 

I was very lucky I had minimal side effects but for me it worked, still managed a couple of cruises and either a weekend or 5 day break monthly during treatment. 

Fat finger's pressed send- 

Try everything you can do it 

Thanks for that, glad it has been good for you , it makes me feel less worried about it i tolerated the chemo fairly well so hopefully I will tolerate this too the holidays sound great, I haven’t been away for years i will take a leaf out of your book and get out more lol

Thankyou

You must get out as much as you can, I started with one coffee out each week built up and up, joined a friendship group with no hair, still friends with most of them now. I'm now 70 still going strong. 

Hi foxy 

yes I will definitely get out more in the new year i start my treatment on the 5 th of jan so I have a bit of a reprieve for Christmas which is nice just got the results of my scan and like you I’m not ned but nmd which is no measurable disease as I still have cells that can only be seen under a microscope which is as good as I could hope for at this stage  and my ca125 has gone down from 280 to 7.  Im 67 years young lol

Happy Christmas to you and all on here x