Hi just invited to this group. My dear husband has this disease which, we are told is incurable, but manageable and so far it is. I think that I would be uncomfortable sharing my feelings as would not want to upset anyone or burden them. I will be better...
Hi everyone I'm new here, My dad was diagnosed with this awful disease a year ago now which is MDS, he has had brain cancer for 27 years and weirdly the chemotherapy he had for that has actually helped and the tumour is fine but if it was to grow untreatable...
My youngest son who lives in Canada with his wife and two young children was diagnosed just before Christmas with MDS & MPN Overlap. I know it’s early days. I’ve been trying to find out more about these two rare blood cancers but it’s difficult. It...
My Dad has MDS he’s deteriorating before my eyes
Hi.After severel venesections and hemacrit struggling to stay at 45 .been given interferon 1st infjection tonight .scary times,any reassurance from others with this treatment would be good TIA
Hi everyone, I was diagnosed with the above about two months ago. I’m struggling with the tiredness and feel I’m letting people in my home life down as I just don’t seem to have the enthusiasm to help with general jobs in the house. I also have monthly...
My partner was diagnosed with MDS a year ago. He had a leukaemia scare 10 years ago and after a bone marrow biopsy he was told he was ok. He also has COPD so he’s always been a little breathless but this last year has been the worst. after becoming increasingly...
Hi Everyone On Monday I was diagnosed with this form of blood cancer. I’m having a venesection tomorrow, then will start on my chemo tablets. Would like to speak to others whom are going through this, as really scared and don’t know what to expect. T...
Not sure if I'm in the right group but couldn't find a group for throat cancer. My husband has recently been diagnosed with a T3 throat (thorax) cancer. Hes had an op to debulk the tumour so he was able able to breathe more easy. He has a feeding tube...
My ET was diagnosed after I fell and broke my wrist very badly. Blood tests were taken before surgery and my platelets were very high. At first it was attributed to the trauma but they continued to rise. My GP was very concerned and made an urgent referral...
