My husband has MDS EB. One round of azacitidine destroyed his ability to produce red, white, platelets. His white count is still too low to proceed with cycle 2. His Consultant took a marrow sample and today told my husband that his marrow is empty. I...
I have MDS which is basically bone marrow cancer. Ive had this for 14 years. I was in remission until Feb 2021 when I got Covid. Im now facing a bone marrow transplant at 55. Ive have gene mutations which could lead me to develop Leukemia. Im back on...
Hi everyone How good it is to have our own blood cancer group, yay! Anyone who has myelodysplasia will first of all know how difficult it is to remember its name and then how to pronounce it. They will also know that depending on which part of the blood...
Hi anyone. I have very recently been diagnoised with Polycythaemia and have just started chemo tablets this morning. Due to Covid I have not seen any medical person face to face and just feeling a bit alone. Is there anyone out there with the same condition...
