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Hi, I got diagnosed a few weeks since at stage 3 - it took months to diagnose Now started R-CHOP, had first treatment and need 5 more. Feel relatively ok but worried I will get poorly as treatment progresses. Joined this group to share experiences and...
Dear All. Hello! My first post here, so bear with me as I learn to navigate the Online community experience. Firstly, my heart goes out to all fellow NHL travellers - patients, family, or whomever. And wishing you All the very best, whatever stage you...
Hi NHL family, Hope you are all doing good? I was diagnosed a few months ago and was prescribe Bendamustine and Rituximab . Bendamustine - okay not great but coping Rituximab - woohoo - not great - have severe reactions which involved face, hands...
15 years ago I was diagnosed with Non Hodgkins Lymphoma Grade 4 with 2 weeks to live, now 15 yrs later I have it again and am grade 3b and on watch and wait this has of course affected my mental health having to walk around with this cancer eating away...
Hi. I'm awaiting the outcome of a biopsy I had on a lump above my collarbone. I've be experiencing symptoms on and off for a while, which I put down to perimenopause. I'm worried about the extent of the cancer, I have lower back ache, and pains in my...
HI, I have just joined recently. My mum was diagnosed with lymphoma of CNS last year. She has come through a hefty chemotherapy regime but has been left with several effects of the lymphoma on her body. The most significant one is bowel incontinence...
Hi, My mum has been receiving treatment for B-Cell Lymphoma. R-CHOP Chemotherapy. She had a scan last week to see if this treatment is working and we are waiting on the results. I am frightened and I am looking for somewhere to admit my fears. I am...
I was diagnosed with NHL ( Nodal Marginal Zone B-cell Lymphoma or Lymphoplasmacytic lymphoma) i n July last year. I’ve had 5 rounds of chemotherapy and now I’m having Rituximab maintenance every 8 weeks for a total of 2 years. Is anyone else having Rituximab...
This is my first ever chat in any chat room. What has prompted it was i am finding it difficult to cope with my wife's NHL cancer treatment. The "side effects" I didn't expect from the treatment have totally changed my wife's personality and her relationship...
I've just had my first chemo, I've not drinking tea and I'm not really fancying food. Is there any recommendations please and did anyone not sleep as well too.
