This is my first ever chat in any chat room. What has prompted it was i am finding it difficult to cope with my wife's NHL cancer treatment.
The "side effects" I didn't expect from the treatment have totally changed my wife's personality and her relationship with me. She is in effect a different person.
Strange things she does like going into a shop and buying things you don't need or too many of. The latest strange activity is deciding to tidy up years of personal possessions and hordings, but at 2.00 in the morning!
She used to be very understanding loving person, but now most of the time, is difficult and offensive even.
Hi Chesh and a warm welcome to this corner of the Community although I am always sorry to see folks joining us. I am Mike and I help out around our various Lymphoma groups.
I was diagnosed back in 1999 with a rare, incurable type of skin NHL Stage 4a so although my Lymphoma ‘type’ my be different I, like many in these groups understand the challenges of this journey well.
Sorry to hear about how the Side Effects of Treatments is affecting your wife and indeed home life…… unfortunate this happens.
You don’t say what exact type of NHL she has and what treatment she is on?……. but these treatment are very strong and do effect ALL the body developing chemical reactions to muscle, nerves our metabolic balance and indeed the brain……. so Chemo Brain is unfortunately a very real thing.
My main bulk of treatment was between late 2013 stretching late 2015……. to this day I still hear stories from my wife, two children and even my granddaughters about some of the crazy and rather bizarre things I did and said over this time….. “Grandad do you remember……?” and I have no memory of these incidents.
So it is important to realise that this is not her and once treatment is completed and time is given for the accumulated effects of the chemo to leave her body - normally a good few weeks things will settle down.
I always maintain that the cancer journey is just as hard, if not harder for those who are looking on.
I always highlight the Lymphoma Action website. The Bold link above are taken for the site. Lymphoma Action is a small but very active UK Lymphoma Specific Charity who have lots of good reliable information, videos and run regular Lymphoma Online Support Groups for patients with a few groups specifically for Family and Carers...... I highly recommend these groups as there is nothing better than talking with other who are walking the same journey.
Always around to talk more…… and to put questions to my wife Fiona as she has the T shirt in all things being the carer.
Hi Chesh, I'm sorry to hear about your wife, I'm Jean (Gypsy rover) I was 55yrs old when I was admitted to hospital 30th May last year & I was diagnosed with NHL 10th of June after a biopsy, I spent 16 weeks as an inpatient for my treatment , the treatment I was given was so intense , you didn't mention what NHL or treatment she was given , we are all different so even if it was the same I had our bodies would react differently, I'm sorry you're having a hard time with the changes that you're wife is displaying, Being diagnosed is the biggest shock to our system but the treatment , what it does to us , physical and mental changes between treatment and all the changes its a lot to take in , in a short period of time, there is lots of help out there for your wife and for you also , Mike ( the Highlander) he's the best guy on here to speak too , me as a woman I have the knowledge of the experience, Since my treatment I've been in remission since October, but I have had after/late effect, Chemo fog/brain... peripheral neuropathy... My sleep patterns... Frustration at not being able to do the things I used to do, but things do get better and settle down but it does take time , if I can help feel free to message me , or maybe it would be good for your wife , I can talk to her , take care, keep safe and well... 
