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Hi all! I finished my six sessions of DA-R-EPOCH chemo for PMBL just before Christmas, and had a PET scan last week to see if it was a success. The doctor I saw at clinic said it looked all clear, but I had a call from my CNS that evening saying the radiologist...
Hi, for the last 5 months it was thought that I had lung cancer. I’ve just had the pathology results from the lower left lung lobectomy I had to have. It turns out I have marginal zone lymphoma. can anyone please help me understand what this is ? What...
My mother was recently diagnosed with Stage 1E CNS Lumphoma. She had a mass in her cerebellum that was causing her severe balance issues, dizziness, and nausea. As they could not reach a diagnosis any other way, they ended up doing a biopsy and resection...
Hi everyone, I’ve not posted here for 4 years and I’m awfully sad to be here again but I know this community as a safe space. My father was diagnosed with HIV driven Burkitt Lymphoma back in Oct 2018. After enduring only 3 out of 4 cycles of R-CODOX...
Hi my names matt and I'm 39 and I was told last week that I have lymphoma, biopsy has gone off to Southampton for further tests and I have a pet ct scan this Friday. In so much pain and so scared right now, can't sleep due to the pain and anxiety. Doctor...
Hi everyone, Just wanted to say thank you to the highlander for helping me with everything and understanding. I've been given good news, my chemotherapy has worked and it's gone, from a stage 4 too. My hair is starting to grow back but I'm still...
Hi, I'm a 57 year old woman who developed severe symptoms of interstial cystitis, a benign condition, in my late thirties but despite haematuria it took 6 years to get a cystoscopy and immediate diagnosis of end stage IC with a severely inflamed, scarred...
I just wanted to let you all know that I am now in Complete Remission from Stage 4 Advanced Non Hodgkin’s Lymphoma Diffuse B Cell. I thank everyone for their support especially The Highlander and just want to say never, ever, give up hope.
Hi All I was diagnosed in Nov 2022 following biopsy of lump. It felt like a bit of a whirlwind of staging blood tests and scans and initial treatment thinking was radiotherapy to lump to get rid of it. I had no symptoms other than initial lump so I felt...
Hi... I guess I'm here to reach out for support, my mam was diagnosed with NHL in February, last year, she was treated with chemo and went into remission August 2021. On new year's eve we found out the cancer has returned in her brain, basically there...
