Hello feeling worried and trying to not worry.

Hi Sid31

I'm Sue AKA Cakie , so sorry to hear your story you certainly are on a roller coaster ride at the moment but it's good that you felt you could reach out to this group for support. 

Myeloma is a complicated disorder to diagnose and I'm not a medic but it doesn't rely on one test to validate a diagnosis . I can't see in your post that you have had a referral to a Haematology dept yet ? It may put your mind at rest to sit down with your GP and speak with them about how you are feeling and what your fears are .

Waiting for a diagnosis is not easy. I have Myeloma and there are so many successful treatments now .Had Stem cell transplant April 2023 and now in remission and feeling great .

Macmillan have a very supportive helpline that I used  waiting for diagnosis .Don't feel you are on your own keep talking to people who you trust and always know this group is here .Sue 

Thank you so much Sue for your reply. I’m so pleased to read you are in remission and the stem cell transplant was successful. Reading this put a positive focus on my thoughts.

i just went straight to worst case. 
I am having blood tests tomorrow and go from there.

My nurse did seem to feel it is osteoporosis but with everything recently I just went down.

i hope you have a very healthy Christmas and new year. 
thank you

Jan

Hi. Sid 31.   Kevin here AKA.  Vespa.   I like cakie have MM.  in Remmision  on maintenance drugs   All very much best I have been for 18 months.  11 months post stem cell transplant.       The steps to diagnose MM. are thorough and they will try and fix this first.    Like you I have some bone problems.    Now they are working on this with bone strengthening injections every 4 weeks   The MM. TREATMENT is unbelievable good  hope you can get to this stage.   Not saying it’s easy.   It’s not   Hardest part is letting other people help you     It took me 10 days in hospital post stem cell transplant this is the low point every day after that you get stronger.  Eat better. Walk more    Macmillan is a great source of support for both you and the people who care for you.        You are not alone on this forum.     Best wishes.  Kevin 

Thank you so much for your reply. It’s so good to hear positive experiences. You are doing amazing thank you for sharing your story. I really hope after Christmas I know where I am and what I am facing. Thank you Jan

Hi sid31 

I have mm was diagnosed  in Feb started on 4 cycles of drugs chemo etc had stem cell trans in July it was not easy I feel good now I am starting another 4 cycles of drugs also bone hardner I had bad back pain then got a blood test after 12 weeks result MM 

I hope you find out soon what is going on it is the not knowing and worry .

Thank you so much for your reply Kizi. Golly that does sound very intense but I’m so pleased you’re feeling better now. It is definitely simmering in the back of my mind. I’m having a more positive day today seeing the posts that you are all doing so well. Thank you Jan

Hi Sid31 and another warm welcome to this corner of the Community although I am sorry to see you joining us.

I am Mike and I help out around our various Blood Cancer groups and it's great to see the group members picking up on your post and giving you some great support.

I don’t have Myeloma ....... but for some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of slow growing Low-grade non-Hodgkin lymphoma) ……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive fast growing High-grade non-Hodgkin lymphoma) was then presenting so although my Lymphoma ‘type’ is different I most definitely appreciate the challenges of this journey rather well....... and like many of the group members I have also had Stem Cell Transplant.

As always the Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00..... although there may be differences over the holiday period

This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.

For good information do check out Myeloma UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 0800 980 3332

You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups, the one I attend does have a few folks with Myeloma in it so worth checking.

Always around to help more or just to chat........ but do have a wonderful Christmas Day....... and this also goes to all the other members in this group.

Oh wow Mike I have just read your cancer story. What an inspiration. You have most certainly been through the mill and ringer more times than anyone should. Thank you so much for your reply and your insight to positive thinking. It’s been a rotten year this year for us but seeing your story has made me feel I can face what ever it is with more positivity.  Thank you I hope you have a peaceful Christmas and a healthy new year.. I am definitely keeping the Nelson Mandela quote right in the front of my mind. Jan