Hi there, I'm a wife of an amyloidosis sufferer, and we’ve been given access to a macmillan nurse from our hospital, but here on the website Myeloma is the closest illness available to select. Is there anyone here dealing with amyloidosis, or being...
Hi everyone, this is my first post. I was diagnosed with Multiple Myeloma in January and started my chemo in March, 2 doses so far. I am on Velcade, Daratumumab, thalidomide and Dex. I am struggling with nausea and have tried 3 different anti nausea meds...
Hi Someone very close to me has recently been diagnosed with myeloma. She is In her early sixties and is fit and well otherwise. Her treatment starts this week on the newly approved drugs. This is all very new to me. I've not had any experience of...
Can anyone who has had SCT at Kings London let me know their experience please. Thanks in advance
Hi my mum has multiple myeloma, diagnosed 2.5 years ago she's been a remission once for 9moths after valcade and Dexamethasone. When the myeloma came back in March last year she was very ill after first month on chemo and was in hospital and was told...
Hello, I have come here today to see whether talking to you about Myeloma (blood cancer) and hopefully develop some ways of coping with the fact that my Dad has it. While my Dad has been diagnosed with Myeloma for 6 years (I think - he told me a year...
Hello this is my first visit here, my husband has been recently diagnosed with multiple myeloma, i thought i would join up to get some help and advice.
I was diagnosed with leiomyosarcoma last may so I'm a member of the soft tissue sarcoma group. It is a very aggressive and rare cancer and is Incurable. I'd had some bloods taken at the GP a couple of weeks ago and got a call to go in to discuss my...
Age 82. Type 2 diabetes, ostio arthritis, rheumatoid arthritis and heart problems. Earlier problems with anaemia investigated but not resolved (though given blood tranvusion). Problem identified from blood test for type 2 diabetes. Haematologist at...
Hi, I'm new to this group. My partner has had a diagnosis of myeloma in December. He's now on his second cycle of chemotherapy. He is slowly feeling better. I was wondering if anyone is going through the same. Sarah
