I was diagnosed with leiomyosarcoma last may so I'm a member of the soft tissue sarcoma group. It is a very aggressive and rare cancer and is Incurable.
I'd had some bloods taken at the GP a couple of weeks ago and got a call to go in to discuss my results. She said everything pointed to myloma. I said stop there I've been here before. Two other GP's had also told me the same a few years ago but the bence jones protein test disproved it. I also have non alcoholic cirrhosis of the liver and saw my hepatologist last Thursday who arranged for more bloods and a urine test. I am almost certain that it will come back negative but I still have the worry at the back of my mind. I have fibromyalgia so I'm in pain all the time but I'm getting a lot more bone pain, in my wrists, forearms, ribs and back.
Hi Deborino and welcome to this corner of the Community although always sorry to see folks joining us. I noticed your post had not received any reply’s so thought I would drop in and say hello. I am Mike and I help out mainly around our various Lymphoma groups so I don’t have Myeloma but was diagnosed way back in 1999 with a different, rare, incurable but treatable type of Lymphoma Stage 4a so in part I do know this journey rather well.
It sounds like you are having a rough time and the uncertainty of not knowing what is going on is hard but I do hope that you can get some clear answers soon.
Lets look for some of the group members to pick up on your post. You can also look through the various posts (hit the main group name and scroll down) and as always you can hit reply and ask some questions and see if the member is looking in.
The Macmillan Support Line is open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00 or via Webchat and Email too. This service provides cancer information, practical information, emotional support or just a listening ear. You may also find our Ask an Expert section helpful but do allow a few working days for a reply.
Always around to help more or just to chat
You often have to be your own advocate and push the doors of the system - Keep us posted 
