Yes my husband was diagnosed late August. His chemo has been stopped just before his fifth cycle as he has some side effects. His consultant thinks his levels have reached the lowest that they are going to at this stage in any event.
He hasn’t been unwell during the whole process - he was diagnosed after suffering severe back pain.
STC is our next step so I’ll keep you updated. I know everyone is different but I think our paths will follow the same pattern.
My partner has just started his 2nd cycle of chemotherapy, the numbers are going in the right direction. He also was diagnosed from severe back ache and pain, so much so he could hardly get out of bed.
My partner was diagnosed in December with AL Amyloidosis (rare disease) and Multiple Myeloma.
He is only 42.
He travelled to London (3-4hrs from our home)29th December to start emergency treatment.
He came home just over a week ago and has to go to London 2 day each week to continue treatment. We love having him home although he’s still very ill, fatigued, constantly feels cold although his temp is fine.His mobility is poor but he can manage to get around the house at a slow pace.
Hes being treated with Chemotherapy. They tried him on Velcade once which put him in dangerously low bp zone so will hold off using that again until he’s stronger.
Stem Cell Transplant - if you google it you’ll get all the info - it’s follow on from chemo provided the person is suitable for the treatment. my explaining it will probably totally confuse you!
So sorry to hear that - but we have to stay positive as there are so many different treatments to try.
my husband has been on velcade thalidomide and steroids and has just had side effects after his fourth round hence stopping treatment and looking at STC.
you must both be absolutely exhausted physically and mentally.
I don’t know about you but I feel so frustrated that there’s nothing I can do to make things better especially seeing the struggle with mobility
So sorry to hear that - but we have to stay positive as there are so many different treatments to try.
my husband has been on velcade thalidomide and steroids and has just had side effects after his fourth round hence stopping treatment and looking at STC.
you must both be absolutely exhausted physically and mentally.
I don’t know about you but I feel so frustrated that there’s nothing I can do to make things better especially seeing the struggle with mobility
Please do not Google, to get the best advice got to Myeloma UK, they have all the information you need plus you can also phone them. Wishing hubby all the best.
