Hi. I just want to say hello. I got diagnosed in December, on my birthday can you believe. I am two weeks in to 6 months chemo, DVRD I think it’s called. I’m glad to have found this place. I’m 62 and my wife is away acting as full time carer for her father so she is mortified that she can’t be with me. My daughter and son are stepping up, which helps.
Right now I can barely function with total fatigue. No sleep. Rest doesn’t help. Also I don’t seem to want any food. Nothing I eat tastes good and I’ve stopped eating which is bad.
Work is suffering badly. So does anyone know if there is a point at which energy levels come back? I can barely type this message
Cheers
HI from Vespa, AKA Kevin, 66 male with MM also diagnosed on my Birthday back in June 23, 66th also my retirement day, but...... the treatment DVTB works! i have had 4 cycles of this, and recently my Stem cell harvest and next week, 24 th is my stem cell transplant date, RE your points, I suffer Fatigue, every day, i tried to fight it, but learnt not to, if i can i sleep for 1-2 hours after lunch, i walk every day, to help keep my stamina up, i like you have lost what was a very healthy ( i loved food) appetite but now lost 6 kg since the treatment started, i have "lesions" on my left hip, which can be painful, i chose to eat the foods i like, and fresh fruits, I hope you get to talk to the Consultant and ask questions of things you are not sure of, the classic quote, not bad questions, only poor answers, Macmillan books help you prepare the the journey and i am sure other people will respond to your message on the Forum, you are not alone, ignore google, just use MACMILLAN, BLOODCANCER.ORG AND ANTHONY NOLAN Kevin
Hi, I was diagnosed in February after a routine blood donor appointment. After bone marrow biopsy, MRI, heart trace etc I started chemo. Didn't even feel ill! Had all my chemo, no side effects at all! Had my stem cell transplant in September and after 2 more cycles of chemo, my MM is in remission! I feel great, no fatigue at all, I'm now on my maintenance drug Lenolidomide so hopefully I can start to get my life back to some normality. My hospital have been amazing as have my family and friends. You can and will get thru this. Dont give up hope, stay strong and positive. By the way, I'm a 68 year old female and one last note, my husband has been amazing and supportive too.
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