Hi everyone , just been diagnosed, (multiple myeloma. ) It all happened so fast , I arrived at hospital with severe anemia. After 6 blood transfusions I felt myself again , I’m living in France and don’t speak French. I was carried along with little explanation and no time to deal with the diagnosis. After a 2 week hospital stay with lots of antibiotics on a line , and one chemo I got very ill, pain in back and ribs , sense of smell and taste became acute and I stopped eating and drinking water. I had no understanding that this was side effects . I got shown no results or photos of scans , I was on my own , restricted to the bed and toilet, being sick on an empty stomach , coming out both ends at same time , thought I was dying, so I signed myself out. The pain left after 7 days and I was able to walk unaided again. Cost so far is over 55,000. I want to hear from people who didn’t take the treatment . On the up side I’m getting married next month before I get disabled . I have lesions in my spine and ribs , ( information I got from a doctor I found after hospital. I’m 60yrs. No one asked if I’d prefer to go back to Scotland for free treatment , your all braver than me
