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Hi there just going through some anxiety mode sometimes, im getting scared of travelling too far some ,worries some may happen to me . I started to feel that way since at the beginning of this year and not before since I was diagnosed in 2020 ,I don't...
Hello everyone I would value your opinion on the following. I have started being re-Vaccinated after my STC and have also been offered the seasonal Flu and Covid, from early October. I was planning to have F & C anyway, as recommended 3 months,...
I’m being admitted on Wednesday to have my SCT any tips and advice would be appreciated
Hi I'm a 72 year old man who's recently been diagnosed with myeloma, after several years of my blood being monitored with no previous cause for significant concern. I'm due to start treatment (Isatuximab, Velcade, lenalidomide, dexamethasone) in a couple...
Good Morning Clutching at straws here really. My partner is in hospital - day 13 of stem cell transplant. He started with severe sickness and diarrhoea on day 2 and this is ongoing. He has now lost 10kg in weight. His platelets are at 6 - white cell...
The last appointment with the hematologist he said my Kappa levels in July were 818 and 778 in August. He said I am somewhat of a mystery as my Calcium and Anemia levels are normal and my Renal function is within the correct parameters and the Bone Marrow...
I’m hoping to get some perspective from others with experience of MGUS/myeloma, particularly around ongoing symptoms despite reassuring investigations so far. Background / timeline Summer 2023 • I began developing a number of ongoing symptoms, including...
Morning all. I have recently been diagnosed with Myeloma and start chemotherapy next week. To say I am very apprehensive is an understatement. I live alone having lost my husband in 2019 and feel very alone even though I have supportive family and friends...
Hi all. Does anyone else have the same experience as me and how did you cope. I was on a trial but it was unsuccessful. My SCT failed and the treatment was deemed too strong for me so I was removed from the trial. I have been put on the lowest maintenance...
Hello. I just joined the group and I am a caregiver for my Brother who was diagnosed with myeloma in Dec 2021. Since diagnosis he has been doing quite well until this past month. If I could please explain the history and receive your feedback and input...
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