Hi All
My Dad was rushed in to hospital in mid May with excruciating back pain. He had a sore back for approximately 6 weeks prior. Scans discovered a compressed vertebrae which ultimately led to Stage 2 Multiple Myeloma diagnosis.
He was in hospital for just under 6 weeks. It was torture for everyone but especially him, obviously.
His treatment started - VTD. On his 3rd and 4th outpatient visits for his Daratumumab and Velcade stomach injections his tummy leaked fluid from the injection sites shortly after and lasted few hours. Anyone else experienced this?
Dad has severely swollen legs and tummy. He's gone from a large t-shirt to 3XL for comfort and 5xl trousers in few weeks.
I rang the hospital treatment helpline and told them I was concerned. We went through questions and answers which led to them asking for him to pop in for a check up which much to Dad's disdain led to readmission
His consultant says that my Dads Heart, Liver and Kidneys are good but he has no explanation as to the extreme fluid build up. They have done an MRI and CT scan.
My Dad also now has possible cellulitis so they are increasing his antibiotics to stronger ones and trying to bring his temperature down.
They are talking about the possibility of getting a vascular consultant's input. ( I wish they already had).
Also, Dad has a new severe 'shock' type pain in his shoulder but supposedly nothing is showing on scans or x-ray.
I have been in the room and witnessed the sudden cry out in pain and he embraces or freezes in position scared to move his shoulder. There is clearly something wrong.
Very worried about the fluid and the pain.
Grateful to hear of anyone else's experience with severe edema and possible cellulitis/infection.
They have put Dad forward for Stem Cell Transplant but we are months of that us the other hospital who will carry it out has to approve first, closer to the time.
Stage 2, I was told 3-5 years however community palliative team have said could be last year. I'm confused 
Sorry that we all have to be on here in the first place but I'm glad there is somewhere to talk as I'm struggling but can't tell anyone. I have to keep strong for my parents.
Hi Mardan, thank you for your reply. XX
I hope your stem cell therapy isn't too long a wait.
Thank you for sharing the fact that you are a fracture trauma nurse and still thought you had pulled a muscle in your back. I told my Dad that so he didn't feel alone.
Turns out that Doctors are thinking it could be the Pregabalin that is causing the excess fluid so they are weaning him off that to see if it helps. Fingers crossed 
alas he is in a lot of pain at the minute while they do that. They haven't said what will replace it yet.
I queried the shoulder with the Dr. They said they believe it to me nerve pain that should settle itself and if it doesn't after 6-8 weeks they may consider steroid injection.
He got discharged yesterday and we are so glad he is home but he really is in a lot of pain. Thankfully palliative care nurse is due out on Friday.
Thanks again XX
Wishing you well!!
