Hi everyone. My wife was diagnosed with SMM last November and I am her full time carer. She’s been having blood tests every 3 months and they have been stable. Today she got a letter saying that her paraproteins is 10.2g/o her light chains is 140 and...
hi All, I wonder if anyone can describe the pain that’s talked about from myeloma please ? The reason I ask is that, I have been suffering with pain in my hip/groin for sometime now, and I have been diagnosed with peripheral neuropathy. i have pain...
Hi, I have recently been diagnosed with MGUS and would like to meet other people online to hear/learn about their experiences.
Hi , I am currently on the 3rd cycle of Dara VTD treatment and during the week developed chest pain and was taken into A& E . Discharged a few hours later with no cause found foir the chest pain which had subsided during the time in A& E .Found out later...
Hello to you all. Has anyone been diagnosed with a lower skull base Plasmacytoma ? I’m 53 and was diagnosed with one in May last year after coincidentally hurting my neck very badly (which still isn’t right). I had 25 round of Radiotheraphy which...
Hi All i joined this group a few weeks ago and I have responded to a couple of people but I am so disappointed that nobody has responded to me, I am awaiting my st harvest on or about January 9th I was with the consultant yesterday, I live alone my...
Hi all ,had a stemcell transplant a few weeks ago, not sure what happens next treatment wise. Appreciate anyone who could enlighten me. Many thanks in advance
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi all,I'm 2xweeks into my 3rd cycle and I'm getting more tired along with aching legs and pins and needles in my feet.Any tips would be greatly appreciated. Thanks John
Good afternoon, I'm new here and firstly would like to say hello. I am looking for any advice really on whether there is a negative effect to trying a cbd oil alongside current chemotherapy being taken, and whether it has a negative interaction with the...
