Good Morning
Clutching at straws here really. My partner is in hospital - day 13 of stem cell transplant. He started with severe sickness and diarrhoea on day 2 and this is ongoing. He has now lost 10kg in weight. His platelets are at 6 - white cell is 0.67 and neutrophils are not registering. They have been this low for several days and now he is very very low in himself. All he keeps saying is that he has to get out of hospital and come home. Does anybody have any experience of this and can anybody tell me when he may start to improve. Doctor says could take up to 21 days to start recovering and he can't stand the thought of it being that long. He is also spiking a temperature normally at night.
Hi Supportgiver and a warm welcome to this corner of the Community although I am sorry to see you joining us and hear about your husband.
I am Mike and I help out around our various Blood Cancer groups.
I don’t have Myeloma but for some context I was diagnosed way back in 1999 at 43 with a very rare (8 in a million) incurable but treatable type T-Cell Low-Grade Non Hodgkin’s Lymphoma……. eventually reaching Stage 4a in late 2013 when a second, also rare fast growing type of T-Cell High-Grade Non Hodgkin’s Lymphoma was presenting….. so although my Blood Cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well…….
Especially as U have had 2 Allograft (donor) Stem Cell Transplants (June 2014 then Oct 2015)
I am assuming that your husband is day T+13 post Stem Cell Infusion……. If this is the case what he is experiencing is not than unusual……. It is a challenging time but once his blood counts start to rise and his body starts to recover these issues do tend to recover…… my counts recovers very quickly post my first SCT (14 days)
But post my second SCT I was discharged on day T+20……. and this was with my counts still below the lower acceptable levels but I was safer at home than in the SCT unit……. but my tummy issues had greatly improved by this time.
During both my Allo SCTs….. sickness and diarrhoea did stop out of the blue…… but it can take time… I had lots of unexplained temperature spikes but no infections.
The body is going through a lot so it does tend to fight back at times.
Being a patient patient comes to mind 
Like LadyJayne we had access to a lounge that my wife and I plus visitors could use….. it had a coffee pod machine and various treats.
Yes my wife also visited the M&S next to the Hospital so did have some treats but I have to say the food in The Beatson (Glasgow) was actually good 
Supportgiver although the link below is taken from a Lymphoma Support Charity I also volunteer with…… the Too Tips relate to SCT in general….. and it makes no difference as to the type of blood cancer.
