My husband has stage 4 melanoma.

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  Where do I begin? My husband was not feeling well in mid January of this year. He developed a cough in February that didn't seem to go away and he was losing weight he didn't even have to lose. When he started coughing up blood I knew something was serious and we went to the hospital. He had a chest xray 3 weeks prior. The doctor came into the room to tell us that there was a large tumor on his lung. We both felt stunned. I know many of you have felt this feeling and it's one you NEVER forget. He was sent for an emergency CT where our worst fear was revealed. It had spread everywhere. My husband is only 41 years old. We've been married for 2 years. He has two sons. Life as we knew it would never be the same. In April he had radiation on his lung to try to shrink the tumor so he was able to breathe better. He has also had brain radiation as well. In April he started immunotherapy. He did this treatment every 3 weeks and was able to tolerate it well, fatigue, aches were the only side effects. Pet scans determined that is was working on shrinking some tumors. This gave us hope. unfortunately in August he was complaining of abdominal pain. A CT determined that he had Braf v600e mutation. This meant that the cancer spread (to the bowel) Immunotherapy was no longer an option and now he is on his last option which is targeted therapy (Dabrafenib and Trametinib) He has started this beginning of September. Things were fine in the beginning. Then he developed a high grade fever, Headaches, as well as hives all over his body. He had to stop treatment for a week. He still had hives and fevers. His oncologist lowered his dose of treatment and aside from fatigue and minor aches he is tolerating it much better. His Headaches were a concern so he had a urgent MRI last week and we are just waiting on results. Pet scan will be next month and will determine if this treatment is working. I know this is a long post, I know this is a difficult journey and reading about others journey's makes this less dark. One day at a time, right?

  • Hi  

    That is some story, certainly lots of experience you have both been through. One day at a time indeed.

    I find quite a bit of help in Your feelings when someone has cancer helpful to me and in turn that means I can be more helpful to my wife. We just have the one son and he is far more aware of hospitals than we might like but that is our reality.

    <<hugs>>

    Steve

    Community Champion Badge

    1. Thank you so much, I will certainly look into that. Yes we know this is not an easy road but we walk with the ones we love and try to make a terrible burden less heavy. Hugs to you and your family. 
  • Sorry to hear you and your family are facing this awful disease.

    My husband also has stage 4 melanoma with spread to lymph nodes and lungs.

    Keep us posted.

    Sending hugs x

  • Hi, I have had stage 4 aggressive metatstic melanoma since Feb 2023 with 8 tumours with largest in tibia bone below right knee and duodenum stomach.  Went on a new immunotherapy called opdulag (now available on NHS, previously from US) for 8 weeks which blasted 5 of the 8 tumours with great results. Then treatment attacked my kidneys so was on steriod suppressants for 3 months. Now been on opdiva nivolumab since August 2023, scans every 3 months and no activity to date! Initally told 50% chance of seeing out 2023 but I wanst having that and kept positive setting myself small targets to achieve. As my largest tumour was in tibia bone I was on crutches for 9 months so it did keep me inactive for alot of that time so pottering about the house and garden doing small bits and resting helped alot. Also read an amazing book named radical remission..worth a read, not only for patients but for family as well..made some changes following that read but mainly reinforced my positive mental outlook. 

    Hope this helps.

  • I am so sorry you and your husband are going through this.my husband was diagnosed with malignant melanoma on the lining round his lung on Monday.the cancer has caused a pleural effusion which he is having to have drained regularly because it’s making him so breathless.we are awaiting news as to what options he has and I am terrified and feel so useless Cry

  • I'm so sorry to hear what you and your husband are going through. I am currently stage 3 malignant melanoma and totally understand all you are going through.

    It's tough to be positive when you are attending so many appointments and the news never seems to be good. Scan result anxiety is awful and carrying on seems pointless sometimes.

    I really hope you both get some positive news soon. Much love and sincere best wishes 

  • Hello, it’s the wee small hours and I’m on here because I can’t sleep. As I’m reading posts, I felt I wanted to acknowledge yours. I hope things have eased a little for you both. Your husbands diagnosis was sudden and I so hope he was given an option which made him more comfortable not long after you posted. Having you by his side will be so reassuring. Big hugs xx

  • Sigh. Unfortunately we did not receive positive news. His cancer has progressed and there are no more options. He is now palliative and we are taking the time he has left and cherishing every moment. We are spending time with family and friends. Thank you for your message, and I wish you and yours all the best. 

  • Unfortunately his cancer has progressed and there are no other options for him. We are cherishing the time he has left, spending it with friends and family. Thank you so much for your kind message and I wish you and yours the best. Hugs. Xx

  • Hi,

    I'm so sorry to hear that dreadful news. I can't say anything that will help, I wish I could..sorry.Cancer is evil and there is no justice or fairness in any of it.

    I hope you have quality time as best you can. I really wish you all weren't going through this.

    Much love and sincere best wishes to you all x