Hi I have had fatigue and breathing issues but no melanoma on lungs , just wondered if anyone had these symptoms before surgery and do they get any better ?
Hi rescuem. Sorry you are suffering from fatigue and having breathing problems.Hope you can get some advice soon. Sorry I can’t give you any on this topic. Are you any nearer getting your date for full node clearance? Take care.
No not heard yet the paperwork went on Tuesday , I have a third biopsy tomorrow for vulva they have top to toe me with scans and biopsies , I’m no primary found one lymph node in groin found as a huge surprise and needle biopsy confirmed melanoma in January , I’m so nervous for the operation like you but will be relieved to get this part done I guess I’ve had my lump since September 2021
Hi rescuem. Hope all went as well as could be expected when you had your biopsy and your breathing and fatigue is better. Are you any nearer getting a date for your clearance? I had a phone call yesterday for a date for pre op which is for next Monday .They couldn’t give me a definite date for op but said they would ring me this Friday with the date.Seems to be going on forever. Hope you’re ok. Take care.
Hi SAntorini , that’s good to hear your process is moving on . My biopsy was under local I have three stitches but it really hurt my groin lymph node when the injection went in to my vulva interesting ! I have a face to face to meet the plastic surgeon 11th March but no further info. I sent a Macmillan buddy request and after a few weeks waiting this is due to start next week .I also referred myself to steps2change which was advised to ne by my nhs occupational therapy call , this may be a good talking two options for you as I’m sure like you will be I’m offered loads of practical support but no one has actually asked me what I need and that was a huge lightbulb for me which set me in action to sort out some talking help.
it’s so traumatic I function then crash then function a bit more then crash massively but I did feel a bit lighter In my thoughts knowing my first appointment is next week , I feel it will be followed with a pre opp and covid test the following week or week after . My daughter goes on the school ski trip 30th March .
It’s good to know you are in a similar position to me , best wishes .
The waiting takes its toll on our emotions for sure. We really just want everything done in one week while we're still in shock!
I hope your biopsy went ok and wasn't too painful hon. I know that there are a few on here with no primary and I hop they link up with you. KTatHome is one of those and she's certainly been through the mill but is also very calm, experienced and wise.
Fatigue is normal as we're often more stressed than we realise, as for breathing I'd mention it to your oncologist or your nurse specialist for advice. It could be you're a little anaemic and doesn't have to mean anything sinister. Xxx
We overlapped here, glad you got through today hon.
How is your daughter dealing with it? Does she talk to you about it? I bet she's looking forward to skiing. You can relax a bit when she's gone I hope and let go of the "front" we all put on for our children.
I've been trying to get some talking help from my local hospital and finally it will start next Monday. Virtually anyway! I'm so tired of acting like it's all ok. My daughter, Rachel, has returned to university after a year off for mental health. Suicide attempts X3. Not been a good year last year. Upwards and onwards only. X
Thank you Alottment lover , your previous messages made my heart grow in empathy for your story of your daughter , it’s great to know she’s living her life , one interesting point I was given was all the practical help and how I described people’s reactions around me is that loved ones too are in this trauma abe grieving process too so good on you both for Rachel picking up done strengthening decisions of her own living .
the taking therapy is a good start I also go for reikie to settle my body down too snd try to exercise and eat heslthier just to feel a bit that I’m controlling the controllables my new mantra is overcome and adapt x
Thought I’d pop in to say Hi, I’m reading and thinking of you all, but have no words of wisdom to add today. Except perhaps to encourage a big group hug. I’m not a big one for gifs or pictures but imagine I’m adding a very appropriate one right here and be kind to yourselves today.
So much changes. All my 59 years have not prepared me for this but I do start some virtual talking therapy with a counsellor from the hospital where I have my treatment. That's a big move for me as I'm your typical nurse, coping and carrying on like nothings wrong!
Thank you for your kind words, my lovely girl has had a week back at university and has been ok. She struggles at times but can work through the struggles now as oppose to cutting herself or worse. Now she's gone I can relax and be me for a bit. Giving up my charity shop work has been a life of the saver. It's made me quiet, made me be still. I'm now due my 9th dose of Pembro on Monday so over halfway. Am now worried for when it stops and all I have is three month check ups! Heyho, cross the bridge when I get there.
You have changed from the first time we chatted. You seem to have got a hold of this and are in charge of it rather than it in charge of you. I'm glad for you as it is hard not to let it take over everything and we cannot let this bastard of a disease do that!
I guess your appointment on the 11th is to discuss the surgery so don't forget to note down any questions you have ahead of time. Today I've spent the whole day in the sunshine on my alottment which calms my soul. A good day. Plus I made a chocolate cake to feed us there too! Yummy xx
