Hi I'm new to this group and I'm not sure what to expect but I'm curious if anyone feels like me. I have been living with mantle cell for about 6 years now and have had a stem cell transplant, however I feel anxious and stressed most of the time is this...
hi everyone, I was diagnosed 6/7 months ago with Mantle Cell and can't tell you how shocking that diagnosis was, it was blurted out that I had cancer everywhere by a radiologist who should not have told me. I drove home from the hospital stunned. The...
Hello....I am new to this group and am hoping I will gain some more information about my "condition". A brief history; I am in Melbourne. Australia and was diagnosed with Mantle Cell Lymphoma in May 2020 at the age of 71. My course of treatment...
Hi all Recently diagnosed MCL, last week's PET scan revealed I am Stage 2E and so am getting PICC line on 25th to start Nordic R-MAXI-CHOP cycle 1 of 6. Not looking forward to it in the slightest, so would love to hear some success stories and happy...
Hello I have just been diagnosed last Thursday and it's all very scarey. Start treatment next Monday.
Hello My husband has relapsed MCL after eight years of being clear. We tried Loxo 305, seemed to be working until two weeks ago. Now they are wanting to give him several rounds of R-CHOP then hopefully if his bloods are where they should be, he could...
MCL diagnosis just over a year ago. Described as indolent, I'm glad to say. How does that fit with MCL being diagnosed as a high grade lymphoma type? Had immunotherapy... Ibrutinib and rituximab. The ibrutinib didn't agree with me and stopped both...
I started my MCL journey in April 2015 Starting in May I had 4 cycles of ARA-C chemo with rituximab and detramethadone. In November 2015 I had my Autologous SCT with the LEAM conditioning routine. This kept me in remission until January 2022 when it...
Hi everyone. I have just been alerted to this forum through my being a member of a Facebook MCL UK group. I am actually in hospital undergoing my Auto SCT on day 5! Diagnosed in June 2020. Been through RChop and RDhap then Ibrutinib until August 2021...
Hi everyone, I’ve just joined. Have been on active monitoring since 2017 but had radiotherapy on my groin firstly, currently for a lump behind my tongue. Would be interested to hear from anyone who has avoided chemotherapy so far
