It's been a while. Last couple of months my neutrophils were low. So, Filgrastim injections which seems to help! Also my immunoglobulin is very low so, tomorrow starts my first IVIG. Hopefully this will help my chronic sinusitis which is extremely annoying...
Evening all Its taken me a while to post on here after my diagnosis back in June-25 . So my journey is starting to kick in i think now .Having been given the news in June-25 i have now been told i am on a watch n wait as it is low grade at the moment...
Hi, My Dad just started maintenance treatment of Rituximab every two months for two years. He is, I am happy to say, in remission after 6 rounds of chemo, which ended 4 months ago. Has anyone else been through maintenance Retuximab? Would be really...
Hi all, My dad was diagnosed with mantle cell in June and has just finished his 6 rounds of chemo, in preparation for a stem cell transplant at the end of January. Throughout we have been told that the stem cell would be the difference in relapsing...
There was a guardian article about the success of car T-cell therapy in treating lymphoma cancers. Does anyione have any info on such a trial in this country? Such a shame one only hears about these things from the newspapers and not from ones cons...
Hi folks, I'm on watch and wait with Mantle cell. I've been told to simply eat healthy. I am feeling very tired and am now like everyone self isolating. I want to build myself up as much as I can while I wait for treatment to start. Have any of...
How is everyone getting in taking these. My husband in 2nd week and no energy, so weak and just wants to sleep. Is this normal and will things get better?
I’ve had two cycles of chemotherapy with the third due this week. I’m also having a PICC line put in the day before as there are problems with my veins. I’ve had just about every side effect there is and I’m starting to feel depressed. I’m usually a very...
Hello all.. Briefly: nordic protocol followed by rituximab maintenance. So far so good as far as the cancer, but it's now been determined that I have immune aetiology so the rituximab maintenance has been stopped. Does anyone have any useful links...
Hi, I'm new to this forum. I was just diagnosed with Mantle cell lymphoma with CD23+ phenotype. The oncologist indicated that mine was an agressive form but low risk, although I'm still uncertain what that truly translates to. He said that because it...
