After last weeks shock re keytruda not working for my husband. I rung the Marsden at 9am this morn & ask to speak to my husbands oncologist, whom hes had from the start & not the souless one from last week. I said I wanted to discuss last weeks appointment & had loads of questions. I said I wanted to speak to her before this Thursday, as thats when hes dues pre chemo tests. I also explained that I had a hospital appointment & would be home at 1pm today & free anytime.
I didnt think for one second she would call 5 mins later, which is fantastic, except I had a hospital appointment. So the questions were asked & before I knew it 50 mins had passed & I had less than 45 mins to get to hospital.
So I missed a question due to panic & rushing to get to hospital.
Oncologist explained 4 cycles of chemo a scan after 2 to see how things are going & if ok have another 2 & the maintenance chemo, which she said is a 10 min infusion.
What I didnt ask was:
1. How often is maintenance
2. How long does it go on for or is he on it for life
I really dont like this new onco my husbands seen twice now nor does he, but what can we do, nothing. So I dont like asking her questions as she sounds like " Dr Death" thats the only way to describe her. My husband was so confortable with his normal onco, although shes still on the trials ward, she wont always be around.
So anyone had any experience of this chemo maintenance?
The fantastic news was the brain met has gone with cyberknife. After he had a brief chat with his normal onco, hes perked up. Though earlier today when I got in from hospital, he broke down crying saying he cant get the words from Thursday out of his head & said he doesnt remember anything after hearing " scans not good disease progressed" instead of saying scans have shown no disease in brain, but a slight growth on lung tumour/lymph node, so to be cautious we are stopping keytruda & starting chemo. Even I was floored.
But TBH I'm absolutely terrified of him starting chemo more so than him I think & dread seeing this oncologist again as shes no compassion.
So if anyone as any advice I'd really appreciate it, before my head explodes!
