I had my right middle lobe removed aprox 5 years ago , but this week I was informed that the cancer is back on the siture line , and they are looking at doing another surgery perhaps to remove top and bottom lobe , does anyone have any experience with this as I’m so worried.
Hello Tiger204,
I'm very sorry to hear of your recurrence after 5 years. Having had the middle lobe already removed, if the top and bottom lobes are also removed it looks like the net result is that your right lung will be removed.
I had surgery to remove my entire right lung when I was diagnosed in 2014 and recovered quite well. My main worry, apart from the surgery itself which went fine, was how well I could breathe with just my left lung remaining. I was given physiotherapy straight away after surgery and when discharged advised to walk, starting gently and gradually increasing distance to continue recovery, which I did.
There's no denying that breathing is different with just one lung but I soon got used to the new normal and continue to have very few physical restrictions.
If you have any specific questions let me know and I'll do my best to answer. Otherwise I wish you all the best for a successful outcome.
Derek.
Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm
