So as my last update stated they found cancer again in a lymph node. I'm very positive cause it's just a very small area that glows on scan. But due to its closeness to the esophagus I can't have radiotherapy and apparently what the result of the biopsy showed chemo want be any good eaither. I start immunotherapy the 21 every 3 weeks. The one that starts with a P my daughter has the pares as she likes to read everything so she knows what to expect and watch for side effect wise. But when the doc told me it could cause swelling anywheres in my body I stopped listening as I'm an overthinker and very ainexious so now all I can think is what if my brain swells or my heart I live alone so it scares me a bit. Am waiting on a bungalow by my daughter's but apparently sense im not homeless they arent in a rush to finish the work on it. Rant over But anyways just wanted to know what others experience has been on immunotherapy. Ive heard good things from my cousin as her friend it got rid of the cancer.
Hi Frazzled
I am sorry to hear that you have had a recurrence in your lymph node but pleased that it is only a very small area.
Sounds like your treatment may be pembrolizumab. It is an immunotherapy medicine that is commonly used.
It is good that your daughter has read about it and knows what to look out for. I think the thing to remember is that they always have to tell you the possible side effects and although they can sometimes sound quite scary- it does not necessarily mean you will get them all. You'll be given a number to call for the hospital and you will be able to phone them 24 hours a day if you have anything worrying you or you don't feel well. If you are feeling anxious during the day please do give the Support Line a call. They are there from 8am-8pm.
I am sorry to hear that you are still waiting on being rehoused. It seems really difficult for people at the moment to access the housing needed and they can be waiting for a while.
I wish you well with your treatment and we are here if you need anything.
Jane
