Does it ever go away?

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Hi all,

Feeling a bit down and negative today, granddad was diagnosed 1.3cm T1b squamous cell in February, found incidentally on CT scan, had 15 sessions of radical radio, and scan last week to check effect - waiting until 12th Sept to see consultant. I can't ask for much more, he's come through it brilliantly, amazing, no symptoms, back to his normal self pretty much, but I can't help but ask myself will it always be this way.

Even if the radiotherapy has worked - will there be NED? Can he be in remission if he never had symptoms to start with? Will it have gone completely? Is that even possible? Or will we be back in this situation in a year or two when it comes back, does it always come back?

All I see is people sharing theirs has shrunk, never that it's gone away, hence why I ask can it actually completely go?

Thanks for reading my sad negative rant if you've got this far!

Kate x

  • Hi  all of those feelings are completely normal. This site is fantastic for support whilst going through cancer, but once you are through it, you don’t want that reminder, and you just want to get on with your life. That is why there are not that many people here who are “cured” they are busy enjoying their lives. 

    In all honesty, some people cancer shrink, some go into remission, and some it comes back. There is no rhyme nor reason as to why this happens. Some people are lucky, some are not. I think having cancer makes you realise how important it is to live for today, and let tomorrow take care of itself. It is no good worrying about something that may never happen. It sounds like grandad is doing brilliantly, and there is no reason why this cannot continue. 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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  • Hi Kate 

      If your grandad has had 15 rounds of radical radio and has not suffered any symptoms as of yet then be relieved it has not affected his body. 

     We are all different in how our bodies react to these harsh treatments, and we all hope for good results. But even the oncoligist can never say for sure if it won't return. 

    We continue as cancer patients to look for good results however small ( it's better than a bad one) Be assured his NHS health team will continue to look out for his best interests. We on here would all like positive results, and to be watched over and monitored is a relief after any treatments 

    So there will never be a correct reply to your question, but be assured we wish your grandad all the best, that's the least we can do. And Kate, it's not a sad negative rant, it's how you feel, and many of us have been through this and more some!   i wish him a good result when it comes through.  Ella x

  • Thank you so much Ella, I feel like that's exactly what I needed to read tonight. I am so grateful he has got through it so well, at the young age of 78 he really is amazing! I've seen so many inspiring stories on here that have given me hope, and some stories where people haven't been as lucky as my granddad and I feel selfish for even feeling the way I do at times - he is much luckier than some. You are right no one can say if it will ever come back, and the regular scans bring me so much anxiety but I need to see the positive in that it's a lens to see if anything recurs they can act quickly. Thank you so much you've made an anxious me feel much better xx

  • Thank you Chelle, you are so right and I need to see it the way you have just explained, no one knows what the future holds I need to focus on being grateful for the fact it was found early and he has a real chance, some people are not so lucky. There are not enough hours in the day to worry about things that might never happen, especially when I have an 8 month old taking up all 24 of them! Slight smile

    Thank you so much for your kind response x

  • We all get negative moments and down days, but here is a good safe space to come and off load those feelings, and a good rant always does us good! I’m glad talking it through has helped. X 

    “Try to be a rainbow, in somebody else's cloud” ~ Maya Angelou
    Chelle 

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