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Hi guys, Just found this group, mine has been a bit of a journey, started with dodgy blood tests, high red blood cells, Hematocrit and hemoglobin, more tests, found sky high EPO Ievels, then CT scans, then finally call from hematologist saying suspect...
Hi today was the start of part 2 of my journey after almost a year (tomorrow I had a radical nephrectomy with robotic surgery then a full radical due to size of tumor having a party behind my kidney) I undertook a immunotherapy trial after 3 months which...
Hi all, Was wondering if any of you have underlying conditions and if so what treatment your on. I have dialysis for Kidney failure, have heart failure and am diabetic. My cancer is a 8cm tumour in right kidney with spread to lungs and spine. My...
Hello. I have advanced kidney cancer, spread to lung, liver..anti cancer drug of 4 years no longer working. Now on immunotherapy......anyone having similar treatment?
Hi, I'm new to this site, I was diagnosed in October 2019 with kidney cell carcinoma stage 4 with metastases in my adrenal gland, lymph node, liver, neck and in my bones, I only found out after hurting my back and on going for x-rays was told my diagnosis...
Hi all, After having a radical nephrectomy around the middle of april my taste buds were shot. It was so strange. Everything I ate tasted awful and nothing like it used to taste pre op. I couldn't work out what had happened. I brushed my teeth, gums...
hello to all
I found out last night that a close member of my family has been diagnosed with kidney cancer and it's spread to her brain. I've not been told anything more than this, but upon researching I can see that her prognosis likely will not be good. I can...
Hi everyone i put a post a few months ago about me having a nephrectomy, all went really well! They feel they got most of it out so waiting for scan now (fingers crossed)! It’s been 4 weeks today since the op and I am still really swollen around my...
Hi. My adult son was very recently diagnosed with kidney cancer after secondary tumours were found on his brain. He has just had radiotherapy on his brain and is awaiting more news about his condition and treatment plan. I lost his father to the same...
