New to forum Hello!! - caring for Husband.

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Hi everyone, new to this forum..quick story…

My lovely Husband was admitted via A&E on 13th Jan with suspected chest infection which was Pneumonia, & fluid filled collapsed lungs x2 ultrasound showed suspect nodules on Lungs. CT found lesion on R kidney. After spending 3 weeks in hospital & discharged now with suspected blood clot he had biopsy last week & has oncology appointment tomorrow at Royal Marsden.

just wondering what to expect tomorrrow? Do they do any more tests or is it likely to just be a discussion?

Would love to hear positive stories of similar diagnosis.       (even though we haven’t had the full diagnosis yet they)

we were told 99% sure it was renal cancer & probably aggressive & looks like spread to the lungs. 
I’m not going to lie I'm terrified, but reading comments on here has made me see we’re far from alone & some amazing positive posts too. X thanks for reading. 

  • I haven't had exactly the same but I had my kidney with a big tumour out a year ago. Not spread elsewhere as such according to the CT then, though I am under treatment now for bladder cancer as the kidney tumour was a bladder-type cancer and some new tumours appeared in my bladder a few months later. All a bit beyond my limited understanding of science/medicine really and I decided to just trust the team and go with it. All good luck tomorrow. I think most likely the CT, biopsy and other results will be discussed, and their future plan explained. I think they'd have told you if any more scans or procedures were happening at this appointment. Do take notes and ask questions. My sister came with me and her notes were so useful later as it all went into a bit of a blur for me. I hope they can give you reassurance with a clear plan ahead. Let us know.. this forum is very helpful and supportive in a variety of ways. For me it has been so helpful to read the experiences of those ahead of me on a similar path and to realise how much of a wide variety of reactions and experiences and outcomes there are. Stay with us x

  • Hi TillyV

    Thank you so much for your reply, that’s a good call about me taking notes as I feel there might be a lot to take in. I’ll do my best to update once we know more, I’m sure I’m going to have lots of questions over the next few weeks. Xx

  • Likely a chat about treatment options.

    I have RCC spread to lungs.  Immunology made the lung mets non-detectable and shrunk the kidney tumour.  

  • Just an update on my initial post….

    after our appointment today…we haven’t really moved forward as unfortunately the biopsy wasn’t successful in determining type of RCC so my husband has to have another biopsy this time on his Lung which they are hoping will show RCC type. They tentatively discussed immunotherapy options depending on type discovered. We’re obviously disappointed this is causing another delay to starting treatment but we are where we are & understand the need to be exact.   Just hoping we don’t have any more delays - Dr said expect to start treatment 4 weeks from now which feels like an awfully long wait. :(
    Im sure I’ll update further once we know more. 

  • Mmum thank you for your reply, your experience also gives me some hope, I know everyone is different in response to treatment so we just need to keep everything crossed for a response similar to yours xx

  • Unfortunately waiting often in very stressful situations is a huge part of being a cancer patient. It is not something we ever really get used to. I wish I could say something more cheerful. This forum though is full of cases where things did not turn out quite as badly as people feared. Once you have the full info I am sure you will feel much calmer and stronger. Good luck to you both.

  • Simon, thanks for your reply & your good luck wishes.