New mets

FormerMember over 4 years ago

1 reply
48 subscribers
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Hi everyone I am a newbie to this group but desperate to be with those in the same situation...living with cancer.

I had a right nephrectomy in 2014 and was clear up to 2019 where I had a lumpectomy to my chest wall a result of a solitary metastases.

Now as of Friday gone I was told over the phone by my oncologist that my recent scan showed lesions to my abdomen and pancreas. He wants me to start sunitinib in 10 days. I feel so overwhelmed by it all and so nervous of side effects. Just wanted to be with people who can understand XXX

buttercup01 over 4 years ago

Hi welcome to the Kidney cancer group .

Am interested to hear your oncologist wants you to start Sunitinib, as I and many other folk here have been on Pazopanib for years. Sunitinib is a forerunner of Pazopanib.

The side effects are pronounced but can b dealt with via other meds mostly, eg anti sickness tabs, cream if you get sore hands/ feer , anti diarrhoeal tabs.

But not everyone gets all the side effects and to differing degrees

Most of us find our hair's gone bright white and thin. Mine used to be auburn, curly n thick for instance but no more. It's a small price to pay.

Talk to your oncologist/ cancer support nurse about side effects and what dosage you'll be on. It's possible to reduce the dosage and it still work, eg I started on 800mg/ day and am now on 400mg, having dropped to 600mg in between.

Take someone with you if possible- to jot down answers to any questions you have, then you can reread them later at your leisure.

Do let us know how you get on,

Sue

Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.

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