Kidney cell carcinoma

FormerMember
FormerMember
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Hi everyone, just reaching out to everyone to share my experiences with the NHS and also if anyone has any ideas to put forward as to how I can make this situation a lot easier for the good, hopefully. I am writing this on behalf of my partner who unfortunately in 2019 suffered a ischemic stroke, During his stay in hospital after this event, a MRI scan was done on his abdomen and revealed that he had a growth on his kidney stem that in estimation had been there for literally years. Urology department showed myself and my partner in December 2019 the scan taken and the agreement was that they were to keep an eye on that growth and myself and my partner would concentrate on recovering after the stroke.

My partner has had three scans since this one and only two  follow up appointments has been made to discuss the outcome over the phone because that's when Covid decided to pay us all a visit. Neither of these follow up telephone appointments were actioned and after ringing the department I was told that a specialist will call me back shortly. This never happened. My partner in the meantime has been admitted in total three times with UTI's and the last one was quite serious developing into Sepsis. After over a month in hospital, it then has come to light that the growth has turned cancerous and is no longer benign and that was the cause for my partner's UTI's. After intense treatment to get rid of the sepsis so that my partner was stable enough to be able to drink and eat as he was before, he was moved to another ward and the care lapsed considerably.  I, personally. demanded that he was to be discharged home because they had taken him off fluids, medications and IV pain relief. The hospital couldn't get him off the ward fast enough. Pallative nurses and consultants were hell bent on my partner being booked into a hospice, I said no, he is coming home!!!. How he was sent home was disgusting, he was wrapped in the bedding from his hospital bed , placed on a gurney and sent home with ambulance crew. The only people I can thank from the bottom of my heart in this situation are the two paramedics who brought him home. 

My partner had until recently been denied treatment for this and was instantly put on end of life care, all of his medication that he was taking for his stroke was completely stopped on 12 April 2021 and I was told to NOT ask to reinstate it with the GP.  On 29 April 2021, I had a meeting with Urology and stated that the department knew for at least a year and a half that the growth had changed and was a threat and had not said anything. I managed to change the decision for treatment and was told that the person that I had the meeting with would contact specialists in Cambridge for a treatment that would be suitable. There are lots of other things that has gone on behind the scenes regarding this situation that I am not going to list  because there are so many but my trust in my local hospital is no longer there. Basically, my partner has been treated as a lost cause, hasn't been offered treatment because they think he isn't worth it and they are still dragging their heels putting things in place hoping that he will pass away before it starts. My partner is 59, has worked hard nearly every day that God has sent to him to be able to until November 2019. A strong, stubborn with love man that deserves the right to prove these people wrong and deserves to live basically. I had to ask my local surgery for protein shakes because the hospital didn't even give them to my partner either.  Is there anything that I can safely give him to try and fight off cancer cells or at least help his body do what it naturally does by boosting his immune system for that extra inner power. 

Thank you everyone for your time and sorry for the essay but  we both are so angry and frustrated, 

Esther

  • Hi Stumpy74,

     I am so sorry to hear your story, I know Covid 19 has a lot to answer for too as different areas have done things separately, they have stopped cancer treatments, I don’t know what health group you are with, but I do wish you and your partner gets it sorted out soon, good luck Fingers crossed 

    Sandra 55
  • FormerMember
    FormerMember

    Basically the way you and your partner have been treated is bullshit. Get the CEO of the Trust and demand action or start legal proceedings.