Skin nodules

Hi ,

I'm sorry to see that you not had any replies yet.  I am afraid I have no experience of either the skin nodules or Cabozantinib that you are asking about but believe that brighteyes1948 and are both on Cabozantinib.  's husband was also moving onto this medication recently.

You might want to check back with your oncology team about the nodules as once you have a bit more info it might be easier to ask others on the forum if they have any similar experiences.

I hope that you are feeling a bit better now and have got some energy back.

All the best, 

Gragon x

• Hi Phil, Nice to meet you. 
  sorry you have been having a bad time. I am sorry I don’t have any information on skin nodules. I was thinking that they may have cancelled the lobectomy due to skin nodules impairing healing or something along those lines? I find it helpful to write things down and to discuss them with my oncology specialist nurse who can help with questions I have. She can also pass on information to my oncologist. 
  Do you have a nurse allocated Phil? Maybe she could spread a bit more light on this for you and give you some information and explain the reasons why. I’m sorry as this must be difficult for you at an already difficult, upsetting and stressful time. I started out on Cabozantinib 60mg and I found they can make you very tired and lethargic. I felt as though all my energy had been sucked away. I didn’t really get any other side effects until after around 14 days. Iv been told this is around the time it takes for toxicity levels to build up to a level that causes the side effects. And it took that for me to start getting side effects. Fingers crossed you don’t get them too badly. 
  Feeling tired and exhausted is one of the side effects of Cabo and as brighteyes1948 said to me Cabo can have some awful side effects. But is an amazing drug with some good results. Also that the Drs have lots of tricks up their sleeves to help counter act the side effects you may get for you. 
  im sorry I couldn’t help much with the skin nodules. Hopefully your nurse or oncologist will be able to give you some more information. Maybe try some foods that give you energy such as slow release carbs, porridge for breakfast with banana or some fresh fruit might help. 
  Best Wishes D x

Hi Phil

I have had a couple of skin nodules removed under local anaesthetic and a day clinic these were mets from renal cancer I was told after biopsy, I am now on axinitib and avalumab immunotherapy treatment, early on i was fatigued but have slowly built up some strength so your exhaustion maybe the medication and hopefully things will improve

take care

Steve