Hello, I’m posting on behalf of my mum and would really appreciate hearing from anyone with similar experience.
Her diagnosis and treatment were significantly delayed, and by the time everything was confirmed her condition had deteriorated badly. We feel she was let down by those delays.
She is currently bedbound, which is why her oncologist is refusing immunotherapy. However, she is eating well, mentally alert, and engaging, she can sit on side of bed to wash for short periods. Her being bedbound feels related to disease progression rather than overall frailty.
Has anyone had experience of receiving immunotherapy — or a loved one receiving it — while bedbound or with a poor performance status? Or of an initial refusal being reconsidered?
Good afternoon.
I am just checking to see how things are. I hope you have managed to get some more information and support.
Take care,
Jamie
Helpline number 0808 808 00 00
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Its all a new learning experience. Just when you think you have your head around it, something new can come along.
I start my treatment on friday 27th feb. So reading others post there are a few side effects people are getting. I expect to have some though. So gearing myself up the best I can to cope with them.
How is your mum doing? And I hope you are managing to get some support from her clinical team.
Helpline number 0808 808 00 00
7 Days a week. 8am to 8pm
