I had a partial nephrectomy in October and histology confirmed that it was a clear cell, renal cell carcinoma. My consultant tried to reassure me that as it was only 2.5 cm and that I had clear margins, the chance of a recurrence was very low - around 2%. I should have been delighted but instead I’m having bouts of feeling incredibly low, worrying when I get any slight twinges and get frustrated that I still feel tired if I push myself in terms of long walks etc. I’m almost 69 and used to play 18 holes of golf around 3 times a week but now I’d struggle playing 9 holes once a week. When I do push myself (I’ve been on a 2.5 hour walk today) my whole body aches, particularly around my left kidney that was partially removed. I haven’t had a decent night’s sleep since my operation and when I contacted my GP in January, she prescribed 5 days of Zopiclone and sent me a link to information about mental health and sleep!!
Is what I’m going through normal and if so, has anyone come through the other side successfully? My husband and daughter are absolutely fantastic and offer me so much support but I’m getting really fed up of feeling so low and frightened about the future.
Good morning, HATe06b.
I am Jamie one of the online champions. I am based in the kidney cancer forum. My information about my cancer journey is in my profile.
I am sorry to hear you are still having issues with fatigue and this is impacting your daily life. I have read from others with a partial or full kidney removal, all have been experiencing, including myself at 43 yrs old, the tiredness and fatigued. You are not alone and hoping now I have given a reply, this will encourage others to join in with their support to.
I would say try not be hard on yourself, you had a operation, cancer and this is all very traumatic to cope with. Your body has been though a lot to and look at the postive progress you are making at 69. Build things up slowly, play three 9 games of golf a week, you're still getting out and doing something you enjoy.
I get twinges where my kidney use to be and around the operation site and especially if I do to much bending or moving my abdominal area a lot.
You are not alone, it just takes some time to get back on our feet. Feeling frustrated can impact sleep too. So, enjoy the things you are doing on those days you can and rest on the others whilst you still recovering.
I have have included this link which might help with your feeling of fatigue. It is very common.
Please let me know if there is anything else I can help with. The helpline is also really helpful and they can talk you to about your feelings as well. So give them a call and they will have a chat about things too.
All the best,
Jamie
Helpline number 0808 808 00 00
7 Days a week. 8am to 8pm
I am happy to support and chat anytime. You are doing amazing even if you dont feel you are at times.
Have a good day 
we are here to help.
Best wishes,
Jamie
Helpline number 0808 808 00 00
7 Days a week. 8am to 8pm
