Hi all, it's been a couple of months since I joined and posted about my kidney removal and maybe immunotherapy trial. The trial never happened due to Covid.
All was going well, I was recovering from my surgery and looking forward to returning to work last month (June). U unfortunately that hasn't happened.
After being in rather a lot of back, side and groin pain, I went to see my doctor who promptly sent me to hospital. At first they thought appendicitis or kidney stones but after tests and ct scan I was told I had a blockage on my spine that needed further investigation and was sent home.
A few days later I had a call from my consultant, explaining he had received the scan results and I was told that my cancer has spread to my spine. The L1 vertebra. Just below my spinal column but leaning on my nerves to the right.
Obviously I was shocked! It had only been 5 months from my surgery, which meant the spread was aggressive. I was sent for an mri and treatment was set up. I've had 5 days of radiotherapy and now waiting to see if it has helped. I'm still in pain. At times I can't stand long enough to make a cuppa or to make food. I have good days and really bad days. Today is a good day. My team are amazing. I'm under the care of Velindre Cancer centre in Cardiff, and they are so very very friendly, and helpful. I can't praise them enough.
I'm not sure how this is going to pan out. I don't know if my way of living is going to be compromised. Will I be able to have a normal life? How long till it becomes too bad? Will I survive? Can I please go back to work yet? So many questions and thoughts go through my mind.
Got my follow-up on the 21st with my Oncologist who will let me know what my next course of action is.
