Nivolumab and Ipilimumab

FormerMember
FormerMember
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Hi, my latest scan showed growth in the lung nodule I already knew about and now multiple other nodules have appeared in both lungs.  Please is there anyone in a similiar situation who could give me some positives and who is having or had this treatment. Thank you. 

  • Try searching in "discussion" under these 2 terms  - either separately or together . There are several ppl on various combos of drugs in this group.

    is on this combo.

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • FormerMember
    FormerMember in reply to buttercup01

    Thank you so much Buttercup01. This is the first time I have posted anything. I will take a look, much appreciated.

  • You're welcome

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • FormerMember
    FormerMember

    Hi Poppyfield,

    Im new to the group and my husband has ccRCC  with tumours in lymph & lung and we are looking into Ipi/Nivo combination, I’ve read a lot of info online and it has good results. 

  • FormerMember
    FormerMember in reply to FormerMember

    Thank you so much Buttercup19, that is good to hear. I only had the one lung metastasis to start with and my scan in February showed it was stable but now I have had my scan which was delayed due to Covid, it is showing multiple which have also gone to the other lung and I am really worried as I wasn’t expecting that. 

  • is on this combo

    Sue

    Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
  • FormerMember
    FormerMember

    Hi 

    I am on these two, am due for second treatment shortly, no side effects so far if that helps.

    S

  • FormerMember
    FormerMember in reply to FormerMember

    Hi Stephen, are you still on this combo? How have you been? Would love to hear your experience after 4 months. My dad is about to start nivolumab and ipilimumab treatment tomorrow.