My husband was told in June 2918 after a bad fall down 8 stairs and was hospitalized after have a scan as internal bleeding found to have 2 masses in right kidney it took till the aug to get app which came as a shock it was a surgeon we seen who then told us that the tumors was cancer so almost 8 weeks down line tried to digest this then had to wait till Nic for the operation kidney removed bust since fatigue has been dreadful sleeping load can’t get into a pattern if sleeping stomach swollen he just takes it in his stride me I am panicking as men don’t really tell you how they feel but I know things are but right scan to check incase cancer still there or spread was to be in nay now cancelled due to ongoing virus but with his probs I just hope to hell it ain’t spread and we won’t know til able to get a scan really worried wife here
I see that you joined this group some time ago but these are your first posts so welcome to the community. I like most of the others here are not medically trained but talk from our own experiences and what we have seen others write in this forum but can offer lots of experience and support.
It is always worrying when you are waiting for the results of a scan and it must be even more so wen the scan is cancelled and you don't appear to have any further information about when one might occur. CT scans are still taking place, I am due one at the end of next month, but under the current circumstances they are now being more careful about who they send for them and where. I saw that there was some talk of setting up "clean" centres for cancer patients where they would not treat covid 19 patients to reduce the risk but these are not yet in place and I have no idea how many there might be or where they would site them.
If you have the contact details I would suggest that you contact your consultant and ask them what they are planning to do about following up on your husband and when they are planning to do it, if there is no plan why not? If you have not got contact details you would need to contact your GP and ask them to do this for you. A slight complication is that it is your husbands treatment not yours so you would either need him to do this or his authorisation for you to do it on his behalf.
If I read your post correctly then it sounds like your husband had his operation in November but is still suffering from a swollen stomach and is struggling to sleep. You don't say if he had keyhole surgery where they pump your abdomen full of gas to create more space but this can take some time to disperse although five months seems excessive. I know that some people have tried drinking peppermint tea to aid with dispersing the gas. However, after this amount of time I would suggest that he talks to the consultant as it could be something else causing a problem, another reason to push for a scan.
Having a swollen stomach can make it difficult to get comfortable and lead to a poor sleep pattern which would leave him with fatigue. However, it might be worth getting his GP to check his iron levels as following my operation I also developed anaemia which left me very tired all the time. Another possibility, if as you say your husband does not express himself much, is that he could also be stressed about the situation. A lot of people find that getting some medication to help relax them and enable them to sleep better can make a world of difference. Again it is probably a trip to your GP to sort this out if that is what you decide to do. It might be worth you writing your concerns down before you contact your GP, especially at the moment as my surgery only talks to you over the telephone initially and keeps surgery visits to as few as possible. It is really easy to forget your questions under such circumstances.
I'm struggling to sleep myself tonight which is why I am replying at such a silly time but I am sure that others will be along at a much more sensible time to offer their support as well. Please feel free to ask any other questions you might have. It might also be helpful if you put a bit of information on your profile about your situation as otherwise you will find you have to repeat quite a lot of information. If you click on your username at the top right hand side of the page it will take you to your profile page which you can edit as often as you like. If you click on other members usernames you can see the sort of information that they have included in their profiles.
Hi a second welcome to the forum.I'm the volunteer community champion for this group, so apologies I didn't spot your post earlier.
Gragon has given you a very through introduction to the site and group - despite it being the middle of the night when he wrote it!!
I hope your husband gets a CT scan soon, we call waiting for a scan "scanxiety" - u can imagine why. I was due one at the end of March, but it's been postponed due to the coronavirus.
Mine is just a routine one, to see how my drug treatment is progressing after going back on my meds in Oct. The results between Oct and Jan were very encouraging, so I keep my fingers crossed.
Do ask more questions if u need to. There are plenty of usw been living with kidney cancer for some years now.
Fear of the unknown is the worst thing. Once we know what we're facing, we find the strength to deal with it.
